The 2023 CAN Pro-Am Luncheon, sponsored by TD Bank Group, is an opportunity for CAN supporters to mix and mingle with NHL Alumni while supporting the cause.

This year, CAN participant & staff member Brayden Bradbury took to the stage with his grandma, Lori, to share his incredible story. The following is the speech that Brayden & Lori delivered to a room full of 300+.

They received not one, but two standing ovations. Here’s why.


LORI

Good afternoon everyone. Brayden and I are so grateful for the opportunity to speak to you today about the Canucks Autism Network and the incredible impact they have on people’s lives.

We know because CAN changed Brayden’s life.

We all have hopes and dreams for our children and our grandchildren. Dreams for success and an extraordinary life. I wanted that for my grandson too.

But when he was diagnosed with autism, it made those dreams harder to believe in. But, I still had them – I mean, you have to!

Childhood can be tough enough for kids with autism. But adolescence became a very dark time for Brayden. A dark time for us all. In his struggles, he lost hope. He felt life was over, that he shouldn’t be here, that life was empty and meaningless.

He felt so lost and afraid. He thought the only solution for personal protection was self-imposed isolation.

By 15, he had dropped out of school and spent the next 3 years barely leaving his room.

BRAYDEN

In the summer of 2018, my nana found out about the Canucks Autism Network. And it completely resurrected my life.

I started going to some of CAN’s social programs at places like Castle Fun Park. I liked them so we decided to look at more programs. I then did CAN’s woodworking, and fitness program.

But it was their Explore Volunteering program that changed who I was. It’s an eight-week program where you go around the community and help at other non-profits.

A male young adult organizes a clothing rack at a thrift store

I had no idea I was so capable. I had no idea I could relate to others. And that I was compatible with other people.

Before the program, I believed that I was bound to be nothing. I also believed I was bound to be alone. But for the first time, I didn’t find myself so isolated anymore.

For the first time, I started to feel like I could do something with my life.

LORI

Before we found CAN, I kept telling Brayden how much I wished for him. But his future was always something we butted heads about.

He would tell me, “You know – getting a job, finishing school…that’s never gonna happen.”

But CAN gave him a belief in himself. They gave him an opportunity to feel in control. To feel responsible for what happens to his life.

I will never forget — after the Explore Volunteering program, Brayden came to me and said, “Nana – I think I want to find a job.”

To have your grandson say to you, after two and a half years of fighting – “I need to get a good start on life. I need to go back to school or it’s not going to be possible.”

It was something I’d only dreamed of.  CAN had flicked a switch in him. By 2020, Brayden had received his Adult Dogwood.

Then in 2021, he signed up for CAN’s Skills Training and Employment Program where he landed an 8-week work experience with New Again Cleaning.

Since then, he has worked as a Program Assistant at CAN’s Hockey, Active, Multisport, Gymnastics and Swim programs and is now a Support Worker at CAN Skate. And this summer, he worked as a full-time Program Assistant for CAN’s Summer Day Camps.

But Brayden’s involvement with CAN isn’t limited to his work with them. He continues to attend CAN programs like hiking, mini golf, and snowshoeing and even joins CAN’s Adult Leadership meetings when he has the time. And I truly hope he has the courage to access their mental health programs this coming year.

BRAYDEN

CAN’s impact on my life continues to this day. It continues with events like this one.

When the 2020 CAN Pro-Am was announced, I was just old enough to sign up. My nana registered me and told me that I had to raise the money myself and I did! That first year, I brought in $2,250 for my team, helping us land 6th overall pick on Draft Night.

After Todd Bertuzzi and the Sedins were drafted, my team narrowed it down to two players: Canucks Alumni Brad May and Mason Raymond. May went 5th so our decision was made.

We welcomed former Canucks winger Mason Raymond onto our team. Based on how the tournament went, I think we may have come out with the best pick in the draft.

On day one, Raymond kept setting me up, but I just couldn’t score. Although we lost both of our Saturday games, we were all having fun, and that’s what mattered most. We got a laugh out of Kyle Wellwood’s cherry-picking against us. And taking a faceoff against Geoff Courtnall was something I never thought would happen.

Then, on our last game of the tournament, I scored a goal assisted by Mason Raymond and Taylor Pyatt! Never in my life would I have dreamed this would happen. But CAN makes things like this possible. They’ve made so many things possible for me that I never could have dreamed of.

For me, hockey is a place where I can be myself. Hockey doesn’t care who I am. It soothes my soul and lives in my heart.

And at CAN Pro-Am, I get to be “just one of the guys.” The atmosphere is electrifying, and the environment is so warm, friendly, and welcoming. It’s like coming home.

LORI

I’m so proud of him. I tell him every day how proud I am.

Just a month ago Brayden obtained his Learner’s Driver’s License; another milestone which he thought would never happen.

And thanks to a recommendation from a fellow CAN member and CAN Pro-Am teammate, Brayden has now joined a Co-Ed Rec League.

Sometimes, I can’t believe how far Brayden has come.

CAN was the light in the darkness and a lifeline for Brayden both mentally and emotionally.

As Mark Twain said, “The two most important days in your life are the day you were born and the day you find out why.”

We know in our hearts that with CAN by his side, Brayden will find that why.

I thank Canucks Autism Network and I thank everyone in this room. CAN relies on people understanding the benefit of what they do. And it is because of your support that CAN is able to change the lives of thousands of people just like Brayden.

BRAYDEN

Before CAN, I was a high school dropout who never left the house.

Today, I am so busy with work opportunities that I often face conflicts in my schedule. Who would have ever thought this would be my reality?

Because of CAN, I believe I can be something in this world.

CAN has changed my life. I honestly cannot express my gratitude enough. Thank you.


More CAN Stories

CAN BLOG HOME >

https://www.canucksautismnetwork2024-070224.local/blog/2023-can-pro-am-over-1-07-million-raised-with-nhl-alumni/

https://www.canucksautismnetwork2024-070224.local/blog/canucks-celebrate-autism-acceptance-this-monday/

https://www.canucksautismnetwork2024-070224.local/blog/autism-accessibility-continues-at-nhl-ahl-junior-arenas-across-bc/

https://www.canucksautismnetwork2024-070224.local/blog/breaking-barriers-from-can-to-chilliwack-minor-hockey/

Top photo: Roger is second from the right.

It’s no secret that we love our volunteers. They’re a key piece of what makes our programs and events so special.

This National Volunteer Week, we’re celebrating the positive impact our volunteers have had on Canucks Autism Network (CAN) participants across BC by featuring a handful of their stories on social media and our blog.

Did you know that CAN has 200+ volunteers across British Columbia?
Join our volunteer team >

Today, we’re highlighting Roger Roy.

A retired father of two, Roger began volunteering with CAN because of his sons, both of whom are on the autism spectrum.

After volunteering in both Children’s and Youth & Adult programs, Roger discovered that his ability to relate to teenagers on the spectrum set him apart.

“As much as I loved working with kids in the swim program, I found it easier to relate to teenagers, possibly because I have two grown sons of my own.”

Roger (2nd from left) helping CAN youth & adults with digging & maintenance work at Little Campbell Hatchery.

Roger’s passion for working with Autistic teens was so strong that, a couple of years later, we were proud to have him join our Employment Programs and Services Team as staff.

Having raised two boys on the autism spectrum, Roger knew how challenging it could be finding support for Autistic individuals, especially once they enter their teen years. Rather than enjoying a quiet retirement, he decided to go back to school so that he could provide support to other families like his.

While studying to become a Behavioural Interventionist at Douglas College, Roger signed up to volunteer in CAN programs to get hands on experience working with individuals on the autism spectrum. After his first program, Explore Volunteering, he quickly realized the impact he could have.

“I was volunteering in a program with these two boys that were 15 or 16 years old. They were so fun to be around. I loved working with them, encouraging them, teaching them new things, and kind of being their mentor.”

After volunteering in several Youth & Adult programs, Roger heard about the opportunity to become an Employment Support Worker through CAN’s Skills Training Employment Program (CAN-STEP).

Rogers helps a CAN youth with some holiday wrapping as part of the Explore Volunteering program.

“I remember hearing one of the instructors at Douglas College talk about how there was a need for workers to support teens and young adults. There’s a lot of people going into BI, but a real shortage of people working with that age group. So, when I saw that CAN was hiring, I immediately applied.”

Thinking of his own children and their experiences entering the workforce, Roger was determined to help create a more welcoming and inclusive environment for Autistic job seekers. And it’s clear that he has done just that.

“Roger became an Employment Support Worker about nine months ago and he’s been phenomenal”, said Robbie Hsieh, Director of Employment Programs and Services. “He’s so great at supporting CAN-STEP participants. I recently spoke with an employer that he was supporting, and they said he’s the best job coach they’ve ever worked with.”

For Roger, seeing participants develop their skills and confidence, and supporting them as they learn to navigate workplace culture is its own reward.

“My goal is for them to have sustainable employment, so they can go to work, be accepted, and be able to become increasingly independent.”

While Roger loves his current role, he credits his CAN volunteer experience with helping him find this new direction and giving meaning to his semi-retirement.

“It’s very rewarding work, either as a volunteer or an employee, because you get to change lives.”

“You give hope to people who may be experiencing difficult times, who may be getting bullied, who may not have the opportunities that neurotypical people have. They’re oftentimes looking for personal connections and you can provide that. Be a friend to them. A lot of the time, they’re looking for someone who’s warm and kind, who accepts them as they are.”

If you’re interested in making a difference like Roger, join our volunteer team >


More stories from CAN programs

https://www.canucksautismnetwork2024-070224.local/blog/breaking-barriers-from-can-to-chilliwack-minor-hockey/

https://www.canucksautismnetwork2024-070224.local/blog/nate-keller/

https://www.canucksautismnetwork2024-070224.local/blog/wei-eric/

https://www.canucksautismnetwork2024-070224.local/blog/meet-morgan-the-first-step-is-understanding-and-inclusion/

 

My whole life, things have just been a little bit harder for me.

Harder to make friends. Harder at school. Harder to feel good about myself. But CAN has been by my side almost my entire life. Every step of the way, they’ve helped me realize just how much I can do.

My name is Nate Keller and I am a 19-year-old on the autism spectrum.

One of my earliest memories with CAN was when I was just six years old. My mom signed me up for their soccer camp at Eric Hamber. I was super nervous because I didn’t know anyone. I only knew me. I felt so scared I could barely look up. My hands felt like they were glued inside the pockets of my favourite black Adidas pants.

But something about the people there made me feel better. I remember feeling comforted by the staff. It felt like they already knew me somehow. They had a special way of making me feel safe. They made me feel like I belonged.

My mom says that I used to start every day by asking if it was a CAN day because then I would know that it would be a good day.

When I was little, CAN programs like soccer and basketball helped me learn to play sports like the other kids my age. Then when I became a teenager, I found myself caring more about social stuff, like making friends.

When the CAN Hockey program started, I knew I wanted to join. I made some of my best friends on the team.



We got to go to tournaments and stay in hotels, like other kids who played hockey. I loved being with the guys and talking to them on the bus and blasting trap music in the locker room. We had so much in common and we just understood each other, because they were like me and I was like them. Even the CAN staff made it easy for me to talk to them. They were always a good place to go when I needed support.

At school, I don’t always understand the jokes and things that other kids talk about. I had friends at school but it was hard to talk to them sometimes and I didn’t always feel included. I used to be really nervous talking about my autism because I couldn’t tell if people were curious or just making fun of me. CAN made me realize that my autism was not something bad, but something special and unique about me. CAN made me feel good about myself and who I am. I didn’t know I could feel like that.

After so many years with CAN, I decided that I wanted to help younger kids like me by sharing my own experience with autism. I joined CAN’s Youth and Adult Leadership group and it taught me how to be confident. It taught me that my voice matters.

I then started volunteering for CAN so I could thank them for everything they did for me. Now I have this dream of working for CAN because I love the people there.

They understand me and how I think. They give us a safe place and make us feel good about ourselves. I want to do that for other kids. I want them to know that people will love you because of your autism.

I want them to know that having autism is special. It’s nothing to be ashamed of.

I was recently asked what life would be like without CAN. The answer is easy. Life without CAN would be very hard.

Everything I have done at CAN has really helped me over the years. CAN allowed me to gain confidence and build a community of people I could talk to. CAN helped me become more happy with myself. I don’t think I could have made friends or joined the swim club or track team at school if I didn’t have CAN. But mostly, I don’t think I would have a good outlook on the world if it weren’t for CAN.

I guess I don’t know for sure where my life would be without CAN. Thank you to all the staff, volunteers, and donors that make CAN programs possible.

Nate Keller
CAN Participant, Volunteer, and Future Staff


More CAN Stories

Brayden: “I believe I can be something in this world.”

“I can tell my brother loves CAN, because…”

Sarah Russell: “CAN is home to me.”

 

Kayla is a CAN support worker and incredibly active self-advocate in our community. She is one of the nine autistic voices featured in our Autism Acceptance Month video released earlier this month.

Kayla ends the video by stating, “Autism acceptance means every child and youth on the spectrum and every autistic adult has every opportunity to be who they want to be.”

As we end Autism Acceptance Month, we want to highlight Kayla’s story. What does she want our community to know about autism? How can we be part of the solution to ensure that her vision may come to fruition in our society?



by Kayla Polege

Growing up with undiagnosed autism was hard at times. We sort of knew when I was little, but the doctor who tested me told my mom that she was just being overprotective. I struggled through school with making and keeping friends.

Nobody would tell me when I did something that bothered them. I didn’t know how others were feeling because I couldn’t read their body language or any other nonverbal signs.

I wish they would have just told me directly how they felt. Mom always did her best to teach me what I might have done differently after each social situation. But it was always hard to understand what I might have done wrong without others being direct with me.

My younger brother has Down Syndrome, so we were led to a lot of family support groups for parents of children with diverse needs. Luckily, this gave my mom people to talk to who could help her figure out how to help me – even without a diagnosis.

My brother even had a speech therapist who recognized my struggles. Amazingly, she gave me communication therapy even though we couldn’t afford it. She also gave me my favorite stim toy that I still use to this day.

I was starting college when I finally got my autism diagnosis.

It led me to do more research, better understand what was going on in my brain, and explain it to others. At the same time, I also met some pretty amazing people who gave me what I needed and communicated their needs directly and verbally.

They would tell me things like “I like your hugs Kayla, but sometimes I don’t feel like being touched, can you ask first?” Or they would let me know when I said things that could be misinterpreted just by the order I put the words in.

They knew I never meant to hurt anyone or make anyone uncomfortable. I just honestly didn’t know until someone verbalized it.

I also got criticized and bullied a lot for stimming (ex. jumping up and down and flapping my arms when I got excited) growing up. And at some point, my brain created this auto-switch so that when I started to stim in front of others I would stop. Then I’d get so uncomfortable, I’d feel like tearing off my skin. But I didn’t know why.

One day, early on in college, this happened in front of one of my classmates. She turned to me and said “Why did you stop?” I asked her what she meant, because at the time I didn’t even realize that this was happening.

She said “That hoppy thing you were doing. It was adorable and it made me so happy. Why did you stop?” I thought about it and I honestly I didn’t know.

I didn’t even realize that masking my stimming had become an auto defense mechanism.

Luckily, I had chosen to go to acting school. A big part of learning to act is exploring different sides of yourself so that you can use them to become someone else. Another part was learning how to step out of character after you’ve created them. That’s something that not every teacher thinks to teach, but thankfully mine did.

Just like some actors can get stuck in character, some autistics can get stuck behind the mask of trying to appear typical. The internal struggles they are going through are hidden until they just shut down. And then everyone is confused.

Once I learned how to step out of character, I also learned how to consciously unmask and show my true self when I knew it was safe to do so. And something amazing happened.

I stopped shutting down as often, I didn’t constantly feel like my skin was too tight or my brain was going to explode. Between that and some fantastic classmates, who taught me that someone other than my family could accept me just the way I am, I was able to let myself stim in front of people again.

Stimming also helped me better focus on conversations and connect with people, because it was one less thing my brain had to constantly concentrate on.

I’ve been so fortunate to have people help me accept myself. Similarly, I have always enjoyed helping others with diverse needs, as well.

Over the years, I’ve done a lot of volunteering for Challenger Baseball, Peewee Special Olympics, and different charities that help diverse individuals.

By 2018, I had been out of college for a while and Canucks Autism Network was hosting a 10th anniversary party at Surrey Civic Plaza. My cousin happens to work for CAN and asked me if I wanted to volunteer.

Kayla volunteering at the CAN Family Festival in Surrey.

I agreed right away. There is nothing I loved more than being around people who “got it” and wanted to help out kids who are like me and my brother. So I went with my cousin and CAN set us up to make sure I had everything I needed, including my sensory needs.

Everyone was super nice and great to work with. Near the end of the day, my cousin said, “You know, we have inclusive hiring, you should apply.”

So I applied. And since then, working for CAN has been amazing. One of my favorite pieces of feedback I ever received was, “We love putting you with anxious kids because they are always less anxious with you.”

Even though those kids don’t know that I’m like them – and that I’m coming from a place of experience – I think that on some level, they know I can understand them in a way a lot of the other workers can’t.

Outside of CAN, I also volunteer with Voices of Autism (VOA), a self-advocate advisory group for Pacific Autism Family Network (PAFN). Most recently, we started working on a peer mentorship project.

I was inspired to suggest it after going through a mentorship program where more experienced actors were paired with younger actors trying to get into the business. I got so much out of it and I thought, “You know what? I wish I had this for navigating my differences due to autism.”

So I suggested it to my VOA manager and she took it and rolled with it. We just recently got started and other autistic people have been sending in questions to us. Individuals from the VOA board and membership who feel knowledgeable enough for each issue have been going on camera to film our answers. We’re hoping to have the videos be online with AIDE Canada soon.

For example, one question asked was about accessing post-secondary and finding a good institution that can support different ways of learning and different needs. I chose to answer that one and suggested that most schools will have an open house and that autistic students should go and talk to the teachers and see if they can envision being supported in that space.

I think it’s important that we progress from simply making people aware of autism to really increasing their understanding of autism.

Kayla in her role with the Voices of Autism self-advocacy group.

When people understand more about how another person’s brain works and what they are going through/what they have been through, they have a much easier time accepting that person. Whether that’s a person from a different community or culture, or a person whose brain just works a little differently, everyone is valuable.

This means changing the way that people are viewed and presented to the public. Often times, we look at individuals with differences from a “disability model.” This is where you’re constantly focusing on what people can’t do and attempting to change that about them.

Before I got my diagnosis, I went to an employment support centre, and got some testing to figure out what I would need out of a job, and where I would be be the most successful. But at the end, when I was talking with the lady that I was assigned to, she basically said, here’s a giant list of things that you can’t do. Now let’s find an employer who’s okay with this. It was discouraging. If she had approached me and said, we need to work around some things, but here are all the things you can do let’s find a job that suits that, I would have felt much more encouraged.

What we need in order for people to truly accept individuals on the spectrum and with other differences is a “capabilities model”. This means looking at what society can do to make things easier for those with differences. It means identifying what people are capable of and using that as a starting point for how we make change.

At CAN, every time I run into a barrier as a support worker, it’s not, “okay you can’t do this job then.” It’s, “we know you can do this job, so let’s figure out how we can navigate around it so that you can do what you do.” One arena I was working at had electrical problems one day and the buzzer was constantly going off. I’m sensitive to high pitched noises and I ended up shutting down in the change room after handing my kid off to another worker.

And afterwards, Robbie called me and we talked about what happened and he said, “Okay, in the future – here’s our plan. If that should ever happen again, hopefully it won’t, you are allowed to leave the ice, get your headphones, and wear them on the ice so that doesn’t happen in the future.”

It’s a small concession, but it allowed me to feel like I could do my job. And was really nice and I felt super supported where in another environment, I may possibly have even gotten fired for reacting that way.

Kayla working on a digital art project with a CAN participant at summer day camp.

As an actor, representation in film is important to me. The industry is slowly getting there but having more diverse individuals trained to work in film would it change that much quicker. There just aren’t enough programs willing to train and work with the differences of autistic individuals and others with diversities.

You shouldn’t have to mask who you are to make your dreams come true.

We need to increase opportunities for autism training and understanding in the film industry. If autistic individuals who are aspiring to work in film (whether it’s acting or behind the camera) aren’t understood and can’t get training themselves, it severely limits the opportunities available to them.

Beyond the film industry, there is an ongoing need to increase accessibility in all community spaces. I have also done some work consulting on accessibility with the City of Surrey. Through their partnership with CAN, they’ve done a great job working with capabilities by starting to make all of their buildings accessible – not just for physical differences, but for sensory differences as well.

Similarly, I love that many stores have sensory-friendly times. These are super helpful, as well. One concrete suggestion I would have is to keep the lineup dots on the floor, even after the pandemic. Often times, people don’t realize that many autistic individuals can get uncomfortable when strangers get too close. When lines get crowded and pushy, it can be overwhelming and uncomfortable even if you aren’t autistic. The lineup dots give people the space they need. And if someone isn’t on their dot, it easily gives you the authority to ask them for space.

Whether you’re in line at the grocery store, an aspiring actor, or simply trying to find a way to be comfortable in your own skin, you shouldn’t have to mask who you are.

That’s why I’m so proud to share my story, work for CAN, and be a part of groups like Voices of Autism.

It is only together that every child or youth on the spectrum and every autistic adult can have every opportunity to be who they want to be.


You may recognize Kayla as one of the nine autistic voices featured in our #AutismAcceptance video with EY this April:

For every comment or share of the video until Apr 30, EY will donate $2 to CAN! See the post on FacebookInstagramTwitter or LinkedIN!

Learn more about the voices featured in the video:

Corey: Growing up autistic

Natanya: “Autism acceptance means I have a job that I love”

Maxwell: “Listen to us and amplify our voices”

More from our #AutismAcceptance campaign with EY >>

 

April 28, 2021
by Corey Walker

I was diagnosed with Asperger’s Syndrome (now called Autism Spectrum Disorder) in my early 20’s in 2001. However, seeing as autism is a lifelong disability, I clearly grew up autistic; I just didn’t know it at the time. That’s not to say I didn’t receive any help or support as a kid. I was diagnosed with ADHD in Grade 2, so I was supported for that. Looking back, I think some of my challenges in life that required support were more due to my then-undiagnosed autism. In this blog post, I will share some of my life’s journey as an autistic with you.

First off, autism was not well known or understood when I was a boy.

In 1985, I was referred to BC Children’s Hospital, as my parents were trying to figure out what made me tick. You see, as a child I kept mostly to myself, and was content to play by myself for hours on end. I appeared to be hyperactive, rocking for hours on my spring horse. I also had gross motor skills deficits. My childhood doctors kept telling my mom that she was an “overpicky” mother, and my quirks would correct themselves in time. The doctors at Children’s Hospital diagnosed me with ADHD, and told my parents “I met all the signs of autism, except I could talk.” They missed the mark, and I would have to wait sixteen years before I learned I was autistic.

Now, before anyone goes criticizing Children’s Hospital, keep in mind this assessment took place thirty-six years ago, when knowledge of autism was far more limited, and the diagnostic criteria far more restrictive. Just like today. medical professionals can’t just make up their own diagnostic criteria, but are required to follow the criteria accepted as the standard by their profession at the time. I suspect my parents would be given very different answers if I was assessed today in 2021.

Despite not knowing I was autistic, there were supports even back then that helped me somewhat. I received therapy from the Child Development Centres in Quesnel and Fort St John. Therapists at both centres helped me improve my gross motor skills. I also received speech therapy at school in Fort St. John, and later Prince George (where I moved to in 1986 and still live today), and this helped improve my speech. We didn’t know then that it was autism that was causing my difficulties.

In school, I benefitted from extra time on assignments, and tests, including my high school final exams. This helped me succeed, and earn honour roll standing multiple times in both elementary and high school. English was my best subject, and math my worst. I never used any of that algebra they tried to teach me. With these supports, I graduated in 1996 with the rest of my peers, and went on to complete a BA in English and History at UNBC, graduating in 2003.

It was only after my Asperger’s diagnosis in 2001 that my parents and I fully understood my uniqueness.

I finally knew why in grade 2, I would run around the school playground, pretending to be He-Man, and why I played (and still play) with my pillow cases and shirts. This is only a few of the questions we finally had answers to. In case you’re not a child of the early 80’s, He-Man was a popular cartoon series and action figure from the early 80’s. I would pretend I was holding his magic sword and saying “By the Power of Grayskull,” which made him the most powerful man in the universe.

I paid my autism diagnosis little regard until November 2006 when I was expelled from teacher training, and had my life’s dream shattered. This was all because I made a rude comment that offended the classroom teacher who supervised me during my first practicum. Like many autistics, I often make unfiltered remarks. I’ve never sworn, but this trait has often landed me in trouble as an adult. It was never anything too serious, until then.

From 2007-2008, I attended college to improve my communication skills, and started becoming the autistic self-advocate I am today.

I started an Asperger’s support group in Prince George back around 2008 for AutismBC, and from 2012-2020, I worked for AutismBC as the Northern Regional Coordinator. During those almost eight years, I connected families and autistic adults with the resources they needed to thrive in life. From 2020-2021, I worked for the Sinneave Family Foundation, where I developed a toolkit to support autistic adults in employment.

Additionally, I helped plan the 2020 Canadian Autism Leadership Summit for the Canadian Autism Spectrum Disorder Alliance (CASDA), and in April 2021, I joined CASDA’s board of directors. I am also a passionate public speaker, and love presenting on autism to diverse audiences.

In October 2020, I started a short-term contract with CAN, where I led Project Relay, a series of online workshops to help employment service agencies learn how to better support autistic and intellectually-disabled job seekers during COVID-19.

Corey (left) was charged with assembling a team of experts to speak to employment service professionals from across BC.

This was definitely the most exciting job I had. I built a five member hub team of employment experts and self-advocates, who presented on various employment and mental health related topics during three virtual webinars, all held in February and March 2021.

I was motivated to lead this project because I wanted to ensure autistics were getting help to find work during the pandemic. I really enjoyed the collaboration between myself, and the larger team of hub team members, co-workers, etc. I love working with others, learning from them, and they from me.

If I was to give one piece of advice to self-advocates about educating others on autism, it would be to speak from the heart, and be honest about your experiences.

People want to hear your stories. Tell them what autism acceptance means to you. What it means to me is that I can accepted for being who I am. That is very important to me.

As we transition from awareness to acceptance, remember simply knowing about autism is not enough. We need to accept autistics for who they are, and embrace their uniqueness. Everybody is unique, and special in their own way. The best action we can take is to share our stories, and listen to others sharing theirs.


You may recognize Corey as one of the nine autistic voices featured in our #AutismAcceptance video with EY this April:

For every comment or share of the video until Apr 30, EY will donate $2 to CAN! See the post on Facebook, Instagram, Twitter or LinkedIN!

Learn more about the voices featured in the video:

Natanya: “Autism acceptance means I have a job that I love”

Maxwell: “Listen to us and amplify our voices”

More from our #AutismAcceptance campaign with EY >>

I’ve been accessing Canucks Autism Network (CAN) programs for almost a year now.

I thought about joining a couple of years back, but hesitated. I was busy with high school and was in a very bad place mentally and emotionally. But I’ve been making progress on healing and being in a better place.

Being with CAN has really been a journey, since I felt like I was entirely on my own beforehand. I joined last August near the beginning of the pandemic.

I thought, “How do I find people that are just like me?”

I had looked elsewhere, but was often found ineligible for different services and programs because I was deemed ‘high functioning’.

Before CAN, I had been paired with workers who had made me feel afraid to show my true Autistic self – that I could not understand social cues or that I experienced sensory overload. I felt like I had to stand up for myself and justify why I deserved to be respected as a human being at a young age.

I can make some eye contact and I can speak, so I was often made to feel like I should be able to move past those social and sensory challenges. It left me with way more emotional scars than I needed.  I felt helpless, scared and alone. Looking back on it, I would never wish it on anyone at all.

So when I joined CAN, I really had no idea what to expect. I joined their Youth & Adult Advisory Group, a group of individuals on the spectrum who provide feedback and insight on CAN programming. After the first session online, there was already a huge difference from what I’ve been used to.

I shared about how certain actions we see in the community can stigmatize Autistic individuals – how making us feel like certain behaviours are inherently bad can be very damaging. I didn’t get questioned or scrutinized for what I had to say. I actually felt as if my voice mattered, and that I was believed with no judgement or shame whatsoever.

“Autism acceptance means I’m part of a community that supports and listens to me.”


Maxwell is one of nine Autistic voices who took part in our Autism Acceptance Month video with EY.
For every comment or share of the video on FB, IG, Tw, IN during April 2021, EY donated $2.
 

Since the Advisory Group, I have joined a number of CAN programs, including the Skills Training Employment Program (CAN-STEP). The program is a 12-week paid opportunity for Autistic youth and adults. I was part of their first cohort this past winter. It took time to build back the confidence that I had shattered. But by the end, I had learned much more than what my five years of high school had taught me – and in a way that I can understand.

Maxwell (bottom right) on “graduation day” with CAN-STEP in March 2021.

The program also allowed me to reunite with a childhood friend, both online in CAN-STEP’s virtual classroom and in-person after the program. As part of CAN-STEP, I’ll be working with CAN as an office assistant starting this May. I’m looking forward to it, including working alongside my future colleagues!

Interested in joining the Skills Training Employment Program (CAN-STEP)? Visit canucksautism.ca/step to leran more.

The best way to support the Autistic community is to listen to us, amplify our voices and to be willing to work with the Autistic community to bring change, justice, and acceptance as a whole. 

As an Autistic person in the community, both online and in person, it’s both saddening and infuriating seeing certain groups stigmatize us – and then around April, act like they have our backs or speak for us just for their own publicity gain. We’re not here to be alienated and looked down upon. We’re human just like everyone else. We just need support and acceptance for who we are – not a cure or to be “solved like a missing piece of the puzzle.”

Yes, I’m proud of the first steps our communities are making right now. It’s a good thing to shift to “acceptance”. But now we got to continue to strive forward for continued change.

I’m glad to speak out on this month with the best of my ability. I’d like to end with a quote which I stand by to this day: “Nothing about us, without us.”


Read more from individuals on the spectrum:

Natanya: “Autism acceptance means I have a job that I love”

Sebastian: “Living a life I like”

Sylvain Formo: Changing my thoughts about autism

Jack speaks in front of entire school

Nate: “I want to help other kids like me.”

 

 

 

 

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April 27, 2021

Natanya Katz is a Canucks Autism Network (CAN) support worker. This past World Autism Day, she was one of nine individuals on the spectrum who shared what autism acceptance means to them in our video with EY:


For every comment or share on the video until Apr 30, EY will donate $2 to CAN.
See the post on Facebook, Instagram, Twitter or LinkedIN!

Throughout the month, we have been taking turns expanding on the stories of each of our video participants. So we asked Natanya: What drives her to work for CAN? What should people know about autism? And why is autism acceptance important?

“It’s important to accept, be open to everyone and enjoy everyone’s unique and individual personalities and abilities,” Natanya said.

As a young woman on the spectrum, her lived experience fuels the understanding and compassion she brings to our programs. Natanya has been with CAN for just over two years. Before being hired as a support worker, she started as a volunteer, supporting kids in our summer programs.

In addition to supporting CAN camps & weekly programs, Natanya (2nd from right) has also volunteered at fundraisers & family experiences!

“My favourite memory at CAN was Overnight Camp on Keats. I remember encouraging one of the campers to let me take him out on the water in a kayak. We saw dozens of seals. His excitement was so rewarding.”

That summer alone, Natanya volunteered in two week-long summer day camps and a full three days at Keats – tirelessly supporting our participants in a range of scenarios.

The following season, Natanya jumped in the pool to support our weekly swimming lessons. Overseeing our swim program at our JCC location in Vancouver was Kaitlin Sterndale-Bennett. Recalling Natanya’s time as a volunteer, Kaitlin had particularly high praise:

“I cannot speak highly enough about Natanya. As a volunteer, she was naturally responsive to the kids, excellent with our visual tools and calm under pressure. She was one of the strongest individuals in the pool.”

Needless to say, Natanya was quickly hired on as a support worker. Her tireless energy, natural ability and clear dedication to helping others are such a benefit to our participants.

Today, she works in CAN’s Active, Multisport, Skate and Music programs.

“I want people to know that people on the autism spectrum are just like everyone else. We have goals and dreams. And we work hard to be successful and achieve them.”

We are so lucky to have individuals like Natanya supporting our participants and families. In addition to guiding our participants in their skill development, she is showcasing first-hand how individuals on the spectrum can lead the way in their community.


Read more from individuals on the spectrum:

Sebastian: Living a life I like

Sylvain: Changing my thoughts about autism

Jack speaks in front of entire school

Nate: What I want you to know about autism

Ryan: “This will all be over soon. I promise!”

 

April 23, 2021

As we continue to highlight those who donate their time at CAN, we introduce you to Morgan Painchaud in Kelowna. Morgan is one of the many volunteers who have since been hired as a support worker in our programs.

Despite making the transition to staff, Morgan still volunteers by organizing fundraisers that benefit the programs she works in! In the past three years, she’s helped organize two unique events that have brought in a combined $4,500+ for CAN! Incredible.

One of them took place this past weekend – a city-wide treasure hunt with Treaze. Find out what motivates Morgan to do SO MUCH for CAN in our Q&A with her!

What programs have you volunteered for?

Since joining CAN as a volunteer in 2017, I have been a part of Active, Multisport, Gymnastics, Weekly Youth & Adult and Summer Day Camps.

I have been very fortunate in the past four years to have the time to put into such a great organization. Between programs and and planning fundraising events, I have accumulated over 100 hours of service for CAN.

I am very grateful to have had so many opportunities to learn about, advocate for, and provide support to autistic children, youth, and their families.

CAN’s Active program with new COVID protocols and physical distancing.

Why did you choose to volunteer with CAN?

I was looking for something I’d be excited for on a weekly basis. Upon learning about CAN, it seemed a little too good to be true.

Hanging out with kids, playing games and being active was the perfect scenario. I can confirm that it’s just as good in real life as it seems on paper!

Tell us about the transition you made from volunteering to become a staff member!

Each week was so fulfilling. Volunteering with CAN gave me the tools to feel confident in supporting individuals with diverse abilities. I’m forever grateful for that.

Seeing how much fun CAN participants have each week and seeing their skills grow has been such an amazing experience. This past Fall, I wanted to take on more responsibility at CAN, so I took the steps to transition into a support worker role.

Since then, I have been lucky enough to become a virtual coach for the CAN Science Club, continue to support Active & Multisport and will be taking steps to become an in-person coach this Spring.

You’ve helped organize two fundraisers for CAN in the two years. Tell us about them!

I was involved in planning and facilitating Country for CAN back in June 2019. Several local BC country musicians came together for a benefit concert. We hosted a 50/50 raffle and a silent auction. The night was such a blast and we successfully raised over $2,500.

This past weekend, a fellow CAN volunteer (and my close friend), Nina Gaspari, joined me in planning a COVID-friendly and socially-distanced scavenger hunt with Treaze. With the support of amazing local companies, we raised over $1,500.

 

View this post on Instagram

 

A post shared by Treaźe Canada (@treazecanada)

What is your favourite memory  volunteering with CAN?

There was one particularly challenging session. I felt like I was struggling to demonstrate the skills my participant needed to work on.

The parent was watching on the sidelines and approached me afterwards. They told me that they had never seen their child so chatty and excited to come to programs before!

It was such an important moment for me. Even though I felt like I was struggling to support them, the parent was just so appreciative that they had a place they wanted to come to.

I feel like that’s the true success of any CAN program – the ability to instill confidence in each individual so that they may feel understood and included. That’s the first step in developing their skills and forming social connections, no matter the activity or community setting.

For anyone looking for a place where autistic youth are supported. Or anyone wishing to provide that support – I can’t recommend CAN enough!


More volunteer stories!

Nina Gaspari: “Be kind to one another”

Meet Austin: Helping give equal opportunity

Sebastian: “Living a life I like”

Kyle Boyle: Why I volunteer for CAN

Former hockey player gives back at CAN skate

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April 19, 2021

This National Volunteer Week, we want you to meet some of the amazing individuals who give back so generously in our programs. From across the Lower Mainland, Kelowna, Kamloops, Victoria and Nanaimo, we are so lucky to benefit from hundreds of volunteers.

Austin Pietramala has supported CAN participants in both Kelowna and Kamloops since 2017. We asked him why he got involved with CAN and what continues to drive him to give back!

Which programs have you supported with CAN?

I have volunteered for Multi-Sport, Swim, Bike, and Skate in both Kelowna and Kamloops!

What motivated you to volunteer with CAN participants?

I have played organized sports throughout my life and understand the effect that it can have on young children growing up. I know it helps with the development of social and motor skills.

But mainly, sports provides kids with the opportunity to just be kids and have fun!

Austin testing out a bike camp activity with staff in Kamloops! (2019)

Growing up, my mother was a CEA, so I was introduced to what autism was at a young age. I always wanted to help people on the autism spectrum like she did.

I was also always aware that people with certain challenges or disabilities (whether they be physical or cognitive, etc.) might not have the same opportunity as others. And that never sat well with me.

So when I learned about CAN, I jumped at the opportunity to volunteer!

Do you have a favourite memory in your time volunteering with CAN?

A participant and I both got along really well with each other, and we created a secret handshake. Every time that something awesome happened or we were just happy and having fun, we did the secret handshake.

The handshake was quite involved too! We were partnered up for a few different sessions, and the handshake lasted throughout all of them.

Why do you continue volunteering with CAN?

I’ve met so many great people had so many great experiences. I want to continue sharing all of the skills that organized sports has given me. And hopefully, a few more laughs and smiles along the way!


More volunteer stories:

Nina Gaspari: “Be kind to one another”

Sebastian: “Living a life I like”

Kyle Boyle: Why I volunteer for CAN

Former hockey player gives back at CAN skate

Starbucks: An extra shot of good

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April 24, 2020

#WeBelieve that every individual with autism should be supported during important transitions into adulthood.

Sebastian Ralphs is not only one of our longest tenured participants – he is one of our most active volunteers! He has used a lifetime of experiences to build confidence, gain life skills and secure meaningful employment. This is his story.


“Living a life I like”

Hi, I’m Sebastian Ralphs. I‘ve been a Canucks Autism Network (CAN) member since it was founded in 2008. First, I was a participant. Then in 2014, I became a volunteer to help other kids with autism. I’ve done so many fun things and learned so much at CAN. Let me tell you about it!

My family and I first heard about CAN from our neighbours, whose daughter worked there. My first activities with CAN were horseback riding at a stable in Southlands and golfing at the driving range with a golf pro.

These experiences were programs that were piloted in CAN’s early years before we shifted our focus on our current sports & rec offerings. Sebastian has been with us for a long time!

I did a lot of summer camps with CAN which helped me be more confident with things like high ropes and rock climbing. I was a little scared with those at the beginning, but the staff and volunteers helped me. I did many years of soccer and swimming until I moved on to CAN’s youth and adult programs.

Sebastian at 14 years old with his friend Tilman. CAN Overnight Camp in 2011.

One of my favourite programs was the CAN music program with the Sarah McLachlan School of Music. I was in the first-ever class that was offered. And that made me happy because I love music. I met new friends and also my first girlfriend in the music classes.

We learned to sing as a choir and also play percussion. Our choir sang at the first CAN Reveal Gala, and we sang “Ice Cream”.

I even shared a microphone with Sarah McLachlan herself!

I was able to do the music program for two years as a participant – and then two more as a volunteer.

My mom first told me about the opportunity to volunteer with CAN back in 2014. I really wanted to do it so I could help other kids with autism. My first volunteer position was at the soccer program. I only expected to do things like set up and take down equipment.

So I was happy that I got to lead warm-ups and stretching and demonstrate skills that I had first learned as a participant.

I have been a volunteer in the Explore Volunteering program, where I helped other youth and adults with autism with various tasks, like making a forest trail and stocking clothing at the Union Gospel Mission Thrift Store.

This program is for youth and adults with autism to sample volunteer opportunities in the community. As an experienced volunteer already, Sebastian helped out in a ‘peer support’ capacity, providing a positive role model for our participants!

Sebastian has additionally participated in one of our first two Translink Accessibility Tours for youth and adults with autism. View video of the first CAN x Translink Accessibility Tour.

I’ve also really enjoyed volunteering at many community events, like CAN’s info booth at Canucks games, family events like Sports Day and fundraisers like the Reveal Gala. I see so many friends and people I know from so many years at CAN.

I’ve been able to do so many fun things, like being a people greeter, assisting at information booths, giving kids stickers and demonstrating games to kids.

CAN has helped me be more social and confident in connecting with other people.

Volunteering with CAN even helped me get another volunteer job as a Sun Run clinic leader at Dunbar Community Centre for the last 4 years. My volunteer experience also helped me get a paid job at Vancity Credit Union.  I’m not doing any of my jobs now because of the pandemic, but hopefully it will end soon.

I am proud that I have these jobs. CAN is helping me have a life I like!


Read more

Volunteer Spotlight: “Be friendly to one another”

Behind the scenes with the Reveal Gala choir

Sylvain Formo: Changing my thoughts about autism

Former hockey player gives back at CAN skate

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