The 2023 CAN Pro-Am Luncheon, sponsored by TD Bank Group, is an opportunity for CAN supporters to mix and mingle with NHL Alumni while supporting the cause.

This year, CAN participant & staff member Brayden Bradbury took to the stage with his grandma, Lori, to share his incredible story. The following is the speech that Brayden & Lori delivered to a room full of 300+.

They received not one, but two standing ovations. Here’s why.


LORI

Good afternoon everyone. Brayden and I are so grateful for the opportunity to speak to you today about the Canucks Autism Network and the incredible impact they have on people’s lives.

We know because CAN changed Brayden’s life.

We all have hopes and dreams for our children and our grandchildren. Dreams for success and an extraordinary life. I wanted that for my grandson too.

But when he was diagnosed with autism, it made those dreams harder to believe in. But, I still had them – I mean, you have to!

Childhood can be tough enough for kids with autism. But adolescence became a very dark time for Brayden. A dark time for us all. In his struggles, he lost hope. He felt life was over, that he shouldn’t be here, that life was empty and meaningless.

He felt so lost and afraid. He thought the only solution for personal protection was self-imposed isolation.

By 15, he had dropped out of school and spent the next 3 years barely leaving his room.

BRAYDEN

In the summer of 2018, my nana found out about the Canucks Autism Network. And it completely resurrected my life.

I started going to some of CAN’s social programs at places like Castle Fun Park. I liked them so we decided to look at more programs. I then did CAN’s woodworking, and fitness program.

But it was their Explore Volunteering program that changed who I was. It’s an eight-week program where you go around the community and help at other non-profits.

A male young adult organizes a clothing rack at a thrift store

I had no idea I was so capable. I had no idea I could relate to others. And that I was compatible with other people.

Before the program, I believed that I was bound to be nothing. I also believed I was bound to be alone. But for the first time, I didn’t find myself so isolated anymore.

For the first time, I started to feel like I could do something with my life.

LORI

Before we found CAN, I kept telling Brayden how much I wished for him. But his future was always something we butted heads about.

He would tell me, “You know – getting a job, finishing school…that’s never gonna happen.”

But CAN gave him a belief in himself. They gave him an opportunity to feel in control. To feel responsible for what happens to his life.

I will never forget — after the Explore Volunteering program, Brayden came to me and said, “Nana – I think I want to find a job.”

To have your grandson say to you, after two and a half years of fighting – “I need to get a good start on life. I need to go back to school or it’s not going to be possible.”

It was something I’d only dreamed of.  CAN had flicked a switch in him. By 2020, Brayden had received his Adult Dogwood.

Then in 2021, he signed up for CAN’s Skills Training and Employment Program where he landed an 8-week work experience with New Again Cleaning.

Since then, he has worked as a Program Assistant at CAN’s Hockey, Active, Multisport, Gymnastics and Swim programs and is now a Support Worker at CAN Skate. And this summer, he worked as a full-time Program Assistant for CAN’s Summer Day Camps.

But Brayden’s involvement with CAN isn’t limited to his work with them. He continues to attend CAN programs like hiking, mini golf, and snowshoeing and even joins CAN’s Adult Leadership meetings when he has the time. And I truly hope he has the courage to access their mental health programs this coming year.

BRAYDEN

CAN’s impact on my life continues to this day. It continues with events like this one.

When the 2020 CAN Pro-Am was announced, I was just old enough to sign up. My nana registered me and told me that I had to raise the money myself and I did! That first year, I brought in $2,250 for my team, helping us land 6th overall pick on Draft Night.

After Todd Bertuzzi and the Sedins were drafted, my team narrowed it down to two players: Canucks Alumni Brad May and Mason Raymond. May went 5th so our decision was made.

We welcomed former Canucks winger Mason Raymond onto our team. Based on how the tournament went, I think we may have come out with the best pick in the draft.

On day one, Raymond kept setting me up, but I just couldn’t score. Although we lost both of our Saturday games, we were all having fun, and that’s what mattered most. We got a laugh out of Kyle Wellwood’s cherry-picking against us. And taking a faceoff against Geoff Courtnall was something I never thought would happen.

Then, on our last game of the tournament, I scored a goal assisted by Mason Raymond and Taylor Pyatt! Never in my life would I have dreamed this would happen. But CAN makes things like this possible. They’ve made so many things possible for me that I never could have dreamed of.

For me, hockey is a place where I can be myself. Hockey doesn’t care who I am. It soothes my soul and lives in my heart.

And at CAN Pro-Am, I get to be “just one of the guys.” The atmosphere is electrifying, and the environment is so warm, friendly, and welcoming. It’s like coming home.

LORI

I’m so proud of him. I tell him every day how proud I am.

Just a month ago Brayden obtained his Learner’s Driver’s License; another milestone which he thought would never happen.

And thanks to a recommendation from a fellow CAN member and CAN Pro-Am teammate, Brayden has now joined a Co-Ed Rec League.

Sometimes, I can’t believe how far Brayden has come.

CAN was the light in the darkness and a lifeline for Brayden both mentally and emotionally.

As Mark Twain said, “The two most important days in your life are the day you were born and the day you find out why.”

We know in our hearts that with CAN by his side, Brayden will find that why.

I thank Canucks Autism Network and I thank everyone in this room. CAN relies on people understanding the benefit of what they do. And it is because of your support that CAN is able to change the lives of thousands of people just like Brayden.

BRAYDEN

Before CAN, I was a high school dropout who never left the house.

Today, I am so busy with work opportunities that I often face conflicts in my schedule. Who would have ever thought this would be my reality?

Because of CAN, I believe I can be something in this world.

CAN has changed my life. I honestly cannot express my gratitude enough. Thank you.


More CAN Stories

CAN BLOG HOME >

https://www.canucksautismnetwork2024-070224.local/blog/2023-can-pro-am-over-1-07-million-raised-with-nhl-alumni/

https://www.canucksautismnetwork2024-070224.local/blog/canucks-celebrate-autism-acceptance-this-monday/

https://www.canucksautismnetwork2024-070224.local/blog/autism-accessibility-continues-at-nhl-ahl-junior-arenas-across-bc/

https://www.canucksautismnetwork2024-070224.local/blog/breaking-barriers-from-can-to-chilliwack-minor-hockey/

Top photo: Roger is second from the right.

It’s no secret that we love our volunteers. They’re a key piece of what makes our programs and events so special.

This National Volunteer Week, we’re celebrating the positive impact our volunteers have had on Canucks Autism Network (CAN) participants across BC by featuring a handful of their stories on social media and our blog.

Did you know that CAN has 200+ volunteers across British Columbia?
Join our volunteer team >

Today, we’re highlighting Roger Roy.

A retired father of two, Roger began volunteering with CAN because of his sons, both of whom are on the autism spectrum.

After volunteering in both Children’s and Youth & Adult programs, Roger discovered that his ability to relate to teenagers on the spectrum set him apart.

“As much as I loved working with kids in the swim program, I found it easier to relate to teenagers, possibly because I have two grown sons of my own.”

Roger (2nd from left) helping CAN youth & adults with digging & maintenance work at Little Campbell Hatchery.

Roger’s passion for working with Autistic teens was so strong that, a couple of years later, we were proud to have him join our Employment Programs and Services Team as staff.

Having raised two boys on the autism spectrum, Roger knew how challenging it could be finding support for Autistic individuals, especially once they enter their teen years. Rather than enjoying a quiet retirement, he decided to go back to school so that he could provide support to other families like his.

While studying to become a Behavioural Interventionist at Douglas College, Roger signed up to volunteer in CAN programs to get hands on experience working with individuals on the autism spectrum. After his first program, Explore Volunteering, he quickly realized the impact he could have.

“I was volunteering in a program with these two boys that were 15 or 16 years old. They were so fun to be around. I loved working with them, encouraging them, teaching them new things, and kind of being their mentor.”

After volunteering in several Youth & Adult programs, Roger heard about the opportunity to become an Employment Support Worker through CAN’s Skills Training Employment Program (CAN-STEP).

Rogers helps a CAN youth with some holiday wrapping as part of the Explore Volunteering program.

“I remember hearing one of the instructors at Douglas College talk about how there was a need for workers to support teens and young adults. There’s a lot of people going into BI, but a real shortage of people working with that age group. So, when I saw that CAN was hiring, I immediately applied.”

Thinking of his own children and their experiences entering the workforce, Roger was determined to help create a more welcoming and inclusive environment for Autistic job seekers. And it’s clear that he has done just that.

“Roger became an Employment Support Worker about nine months ago and he’s been phenomenal”, said Robbie Hsieh, Director of Employment Programs and Services. “He’s so great at supporting CAN-STEP participants. I recently spoke with an employer that he was supporting, and they said he’s the best job coach they’ve ever worked with.”

For Roger, seeing participants develop their skills and confidence, and supporting them as they learn to navigate workplace culture is its own reward.

“My goal is for them to have sustainable employment, so they can go to work, be accepted, and be able to become increasingly independent.”

While Roger loves his current role, he credits his CAN volunteer experience with helping him find this new direction and giving meaning to his semi-retirement.

“It’s very rewarding work, either as a volunteer or an employee, because you get to change lives.”

“You give hope to people who may be experiencing difficult times, who may be getting bullied, who may not have the opportunities that neurotypical people have. They’re oftentimes looking for personal connections and you can provide that. Be a friend to them. A lot of the time, they’re looking for someone who’s warm and kind, who accepts them as they are.”

If you’re interested in making a difference like Roger, join our volunteer team >


More stories from CAN programs

https://www.canucksautismnetwork2024-070224.local/blog/breaking-barriers-from-can-to-chilliwack-minor-hockey/

https://www.canucksautismnetwork2024-070224.local/blog/nate-keller/

https://www.canucksautismnetwork2024-070224.local/blog/wei-eric/

https://www.canucksautismnetwork2024-070224.local/blog/meet-morgan-the-first-step-is-understanding-and-inclusion/

 

by Sarah Russell, CAN participant & staff

I think I always knew that I was different.

For so many years, I carried around this feeling of inadequacy without really knowing why.

When I found out about my autism diagnosis as an adult, it was the most validating information that I could have ever heard.

I was finally able to let go of the weight I’d been carrying and the pressure I’d been putting on myself my whole life. What I used to think of as inadequacies were actually just different ways of experiencing the world.

My name is Sarah Russell. Since 2015, I’ve been working with Canucks Autism Network (CAN) as a Support Worker, Coach, Onsite Supervisor, and Learning Facilitator. And in 2021, I learned of my diagnosis and joined as a Participant.

I began supporting CAN participants before knowing I was on the spectrum. Even then, I always knew that I could be myself at CAN programs.

My involvement with CAN first started when I was working through a partnered program in Victoria called PISE. PISE was looking to accommodate beyond physical disabilities and CAN was looking to expand on the Island.

I kind of fell into the role of CAN Coach, and once I started, I was hooked. I just loved helping participants develop their sports skills so they could ultimately access community programs or school programs or just keep up with their neurotypical peers on the playground.

Since starting at CAN, I’ve held various roles and find them all equally rewarding in their own way.

As a CAN Support Worker, it’s so fun to get to run around with the kids and get big silly reactions out of them, while also being the person who can help them integrate into new situations. I know how hard that can be because I struggled with it my whole life.

For so long, I felt like I had to hide my feelings and authentic experience just to fit in. Autistic people call this masking. When masking, you’re trying to present yourself in a typical way while suppressing your real feelings and experience. It’s upsetting, overwhelming, and uncomfortable.

For so many years, I was supporting CAN participants without knowing that I, myself, was on the autism spectrum. One of the most liberating things about becoming a CAN participant was knowing that I could leave my mask at the door.

I knew from my experience as CAN Staff that I’d be in a safe space where I could just be my authentic Autistic self.

Even when I’m having a hard day, I know I’m going to be supported. I know I’m going to feel heard. And I know I am going to be welcomed as I am.

Being Autistic, you’re already in a marginalized group. Those who identify as female are marginalized even further. So for me, having an opportunity at CAN like the Women’s Peer Support Group is so important because it creates a safe space for us to feel heard and included. We get to come together monthly to share our similar experiences while supporting and validating each other.

When you’re a person on the spectrum who has low support needs, it actually limits the number of resources that you’re able to access in the community.

CAN is really the only organization that I’m able to access.

If it weren’t for CAN, I wouldn’t be able to go the gym or be a part of social activities like bowling or rock climbing because the facilities are too loud and overstimulating. The experience itself wouldn’t even be enjoyable because I’d be forced to push so hard just to be in that space.

Because of CAN, I’m able to access community activities, be physically active, be social with my friends, and even make new friends.

When I think about it, my favourite thing about CAN is that it’s essentially home.

The people who work at CAN are like an extension of my family. Whether I go to a CAN program or event as a staff or a participant, I feel like I can let go of everything and just be myself.

It’s really the most comfortable and welcoming place that you could ever be.


More CAN Stories

https://www.canucksautismnetwork2024-070224.local/blog/breaking-barriers-from-can-to-chilliwack-minor-hockey/

https://www.canucksautismnetwork2024-070224.local/blog/can-removes-diagnosis-barrier-to-program-access-for-youth-and-adults/

https://www.canucksautismnetwork2024-070224.local/blog/why-i-celebrate-autism-acceptance/

https://www.canucksautismnetwork2024-070224.local/blog/nate-keller/

May 4, 2022

At Canucks Autism Network (CAN), we recognize that needs change with age. We believe that every Autistic individual should be supported during important transitions into adulthood.

We’re proud to have evolved over the years to meet the changing needs of our members by addressing some of the major gaps and most urgent issues impacting youth and adults on the spectrum. This includes program opportunities in employment, social and community connection, and most recently, mental health.

One of the most common barriers that Autistic youth and adults face is the need for a formal autism diagnosis to access supports.

In talking with CAN members and the broader autism community, many themes have emerged as potential barriers to formal diagnosis including cost, access to a professional who is qualified to provide a diagnosis, fear of not being believed, and other challenges navigating the healthcare system.

For the above reasons, CAN will no longer be requiring a formal diagnosis for individuals over 13 years of age who are interested in accessing any program or service provided by CAN. This important decision to increase accessibility has already been met with enthusiasm from our CAN community.

Longtime CAN program participant, and now CAN program and training team staff member, Kayla Tellier shared her excitement about the change.

“I almost didn’t get a diagnosis. The cost and fact that it was a late diagnosis would have been barriers if not for having an amazing counselor at the time,” Kayla shared.

“I am very excited about this change as I experienced barriers to services for a couple years after high school and struggled to get a diagnosis due to doctor issues and cost. I was lucky enough that I eventually did get my diagnosis, but I can see these issues being a continued barrier for many others, especially women/girls who frequently go undiagnosed. Allowing people to self-diagnose for services opens opportunities for those who were not lucky enough to find a workaround and for those facing other barriers that often stand in the way.”

CAN Office Administrator and program participant, Maxwell, elaborated on the importance of this shift to allowing individuals who are self-diagnosed to access CAN programs and services.

“As an Autistic individual, I have invested so much time in trying to find appropriate services that would match my support needs. I have eventually just given up on services after having to put in a LOT of trial and error in finding things that can help me,” Max shared.

“Making the diagnosis criteria optional for youth & adults opens a gate of opportunities for other individuals on the spectrum, especially in their time of transitioning from high school onto their own journey.”

CAN’s core program focus areas for youth and adults include: 

  • employment & volunteering
  • social connection
  • recreation & leisure
  • mental health & wellness
  • life skills development

 


Get involved! Sign up for our youth & adult newsletter >

Questions? Email youthandadults@canucksautism.ca

Vancouver and Halifax, Canada – On Tuesday, March 22th, 2022, Autism Nova Scotia (Autism NS) and Canucks Autism Network (CAN) launched a free online training for employers, HR professionals, or anyone looking to improve mental health supports for Autistic employees and job seekers in the workplace.  

The free training, funded by Ready, Willing, and Able, is self-paced and covers the following topics: 

  • Explanation of autism and the mental health concerns that Autistic individuals often encounter in the workplace 
  • Practical low-cost or no-cost strategies that are critical to the well-being of Autistic employees, yet benefit all employees 
  • Strategies on how to identify and respond to a mental health crisis from an autism-aware lens 
  • How to direct employees to external mental health resources  
  • How to select inclusive employee benefits 

A group of advisors based in Ontario, Nova Scotia, and British Columbia came together to advise on the development of the training. The group was made up of Autistic advocates, employers who recruit or hire inclusively, and clinicians who support the mental health of Autistic youth and adults. Managers in Workplace Mental Health with the Mental Health Commission of Canada also provided constructive feedback on the training. 

Kevin A., an Autistic advocate and professional, was among the group of advisors.

“Minimizing noise can be simple and beneficial in many workplaces”, stated A. “But it’s also important that everyone in the workplace knows what autism is, so that Autistic people’s behaviour isn’t misinterpreted as ‘inappropriate’, or so that they can get direct, clear feedback rather than being left to ‘read between the lines’.” 

Tammy Morris, Neurodiversity Centres of Excellence Leader for EY Canada, was also a part of the advisory group. 

 “It is great to see a disability resource that brings together healthcare insurance benefits, EFAP, and public supports, offering a full picture for employers, employees and job seekers who have had to navigate silos,” said Morris. “The training is a good balance of informational content, definitions, videos, case scenarios and take away tips.”   

CAN and Autism NS see the training as a step towards addressing the gap in mental health supports for Autistic youth and adults in Canada.   

“We know there are critical service gaps in mental health supports for Autistic youth and adults across Canada. This online training was created in direct response to that growing need and is a crucial step towards addressing the issue” said Cynthia Carroll, Executive Director of Autism Nova Scotia. 

CAN CEO Britt Andersen further noted, “The COVID-19 pandemic disrupted the employment and job search of many individuals on the spectrum who were already facing pre-existing barriers to employment. Our goal with the training is to equip employers with better knowledge and resources to support employees or job applicants on the spectrum.”  

Learn more or access the training >

About Canucks Autism Network (CAN)
Canucks Autism Network provides programs for individuals on the autism spectrum and their families, while promoting acceptance and inclusion through community engagement and training initiatives across BC and beyond. 

About Autism Nova Scotia (Autism NS)
Autism Nova Scotia is a community-based organization that builds understanding, acceptance, and inclusion for Autistics/individuals on the Autism Spectrum and their families through leadership, advocacy, education, training and programming across the lifespan. 

-30- 

For media inquiries:
Lindsay Petrie, Director of Marketing & Communications
Canucks Autism Network
lindsay.petrie@canucksautism.ca
604.788.8565 

Mariann Peters, Executive Assistant 
Autism Nova Scotia 
mpeters@autismns.ca 
902.446.4995, ext.61 

Is for real? I think to myself.

I’m picking my son up, all I said is hi (I didn’t even have to ask how he is!) and he’s responding to me with the biggest smile on his face saying, “Mom, I’m really happy today.” I couldn’t believe it.

This moment was really meaningful to me because after all these years, Eric never said anything about his feelings. Never. I even forgot to respond because I was so shocked!

My name is Wei and I am the proud mom of Eric, my 19-year old son who has autism. Canucks Autism Network (CAN) programs have been our safe space for the past 10 years. We first registered Eric for a CAN program when he was 9 and a half, and I would like to share our journey with you.

As a mom of an Autistic child, I live every day with anxiety and it’s very draining – constantly feeling like you have to defend your child, yourself, and your family. When these negative feelings build up, it’s very hard to focus on anything else.

But every time I send Eric to a CAN program, I feel relaxed, at peace, and I trust that he is in a safe space. I get a break from always being on high-awareness. From music to sports to job-readiness programs, I know that Eric is always surrounded by positive support when he is with CAN and he always comes home happier.

This is a photo of the first time Eric ever asked me to take a picture with him. He’s usually very resistant to taking photos but he was so proud of himself for graduating from CAN’s Employment Program that he wanted to share it with me.

This special moment will always remind me of a change in Eric that I never thought I would see. I will remember this for the rest of my life.

Every gift will help cover the true cost of ~$500/participant in a multi-week youth and young adult program.

Your generosity will help build a bright and happy future for someone like Eric.

Many of the skills that Eric has learned through CAN programs, he has been able to apply in real life. He is now curious about what’s going on, he takes more responsibility and he even does chores like putting things away, setting up the table, and helping to carry things. He is more happy, calm, and soft. He’ll say sorry to me, he’ll ask me if I’m okay, and I can just tell he is more caring. I finally feel loved by my only child and we have become so much closer.

Having CAN as a safe space has helped us to grow confident when we go out in the community too because I can generalize these feelings of trust, safety, and happiness to different areas of my life. When I feel emotionally safe, that’s when I’m able to open up mentally to more positive experiences. It’s been very inspiring to watch Eric live life with so much more joy and laughter, and I really believe that he has a bright future ahead of him.

I believe we are stronger together.

With your support, you will help more families like mine access this safe space too. This will make a meaningful difference, and I thank you so much in advance for your consideration.

Sincerely,

Wei Zheng
CAN Mom


More stories

CAN Blog Home >

https://www.canucksautismnetwork2024-070224.local/blog/brayden-i-believe-i-can-be-something-in-this-world/

https://www.canucksautismnetwork2024-070224.local/blog/i-can-tell-my-brother-loves-can-because/

https://www.canucksautismnetwork2024-070224.local/blog/breaking-barriers-from-can-to-chilliwack-minor-hockey/

 

Kayla is a CAN support worker and incredibly active self-advocate in our community. She is one of the nine autistic voices featured in our Autism Acceptance Month video released earlier this month.

Kayla ends the video by stating, “Autism acceptance means every child and youth on the spectrum and every autistic adult has every opportunity to be who they want to be.”

As we end Autism Acceptance Month, we want to highlight Kayla’s story. What does she want our community to know about autism? How can we be part of the solution to ensure that her vision may come to fruition in our society?



by Kayla Polege

Growing up with undiagnosed autism was hard at times. We sort of knew when I was little, but the doctor who tested me told my mom that she was just being overprotective. I struggled through school with making and keeping friends.

Nobody would tell me when I did something that bothered them. I didn’t know how others were feeling because I couldn’t read their body language or any other nonverbal signs.

I wish they would have just told me directly how they felt. Mom always did her best to teach me what I might have done differently after each social situation. But it was always hard to understand what I might have done wrong without others being direct with me.

My younger brother has Down Syndrome, so we were led to a lot of family support groups for parents of children with diverse needs. Luckily, this gave my mom people to talk to who could help her figure out how to help me – even without a diagnosis.

My brother even had a speech therapist who recognized my struggles. Amazingly, she gave me communication therapy even though we couldn’t afford it. She also gave me my favorite stim toy that I still use to this day.

I was starting college when I finally got my autism diagnosis.

It led me to do more research, better understand what was going on in my brain, and explain it to others. At the same time, I also met some pretty amazing people who gave me what I needed and communicated their needs directly and verbally.

They would tell me things like “I like your hugs Kayla, but sometimes I don’t feel like being touched, can you ask first?” Or they would let me know when I said things that could be misinterpreted just by the order I put the words in.

They knew I never meant to hurt anyone or make anyone uncomfortable. I just honestly didn’t know until someone verbalized it.

I also got criticized and bullied a lot for stimming (ex. jumping up and down and flapping my arms when I got excited) growing up. And at some point, my brain created this auto-switch so that when I started to stim in front of others I would stop. Then I’d get so uncomfortable, I’d feel like tearing off my skin. But I didn’t know why.

One day, early on in college, this happened in front of one of my classmates. She turned to me and said “Why did you stop?” I asked her what she meant, because at the time I didn’t even realize that this was happening.

She said “That hoppy thing you were doing. It was adorable and it made me so happy. Why did you stop?” I thought about it and I honestly I didn’t know.

I didn’t even realize that masking my stimming had become an auto defense mechanism.

Luckily, I had chosen to go to acting school. A big part of learning to act is exploring different sides of yourself so that you can use them to become someone else. Another part was learning how to step out of character after you’ve created them. That’s something that not every teacher thinks to teach, but thankfully mine did.

Just like some actors can get stuck in character, some autistics can get stuck behind the mask of trying to appear typical. The internal struggles they are going through are hidden until they just shut down. And then everyone is confused.

Once I learned how to step out of character, I also learned how to consciously unmask and show my true self when I knew it was safe to do so. And something amazing happened.

I stopped shutting down as often, I didn’t constantly feel like my skin was too tight or my brain was going to explode. Between that and some fantastic classmates, who taught me that someone other than my family could accept me just the way I am, I was able to let myself stim in front of people again.

Stimming also helped me better focus on conversations and connect with people, because it was one less thing my brain had to constantly concentrate on.

I’ve been so fortunate to have people help me accept myself. Similarly, I have always enjoyed helping others with diverse needs, as well.

Over the years, I’ve done a lot of volunteering for Challenger Baseball, Peewee Special Olympics, and different charities that help diverse individuals.

By 2018, I had been out of college for a while and Canucks Autism Network was hosting a 10th anniversary party at Surrey Civic Plaza. My cousin happens to work for CAN and asked me if I wanted to volunteer.

Kayla volunteering at the CAN Family Festival in Surrey.

I agreed right away. There is nothing I loved more than being around people who “got it” and wanted to help out kids who are like me and my brother. So I went with my cousin and CAN set us up to make sure I had everything I needed, including my sensory needs.

Everyone was super nice and great to work with. Near the end of the day, my cousin said, “You know, we have inclusive hiring, you should apply.”

So I applied. And since then, working for CAN has been amazing. One of my favorite pieces of feedback I ever received was, “We love putting you with anxious kids because they are always less anxious with you.”

Even though those kids don’t know that I’m like them – and that I’m coming from a place of experience – I think that on some level, they know I can understand them in a way a lot of the other workers can’t.

Outside of CAN, I also volunteer with Voices of Autism (VOA), a self-advocate advisory group for Pacific Autism Family Network (PAFN). Most recently, we started working on a peer mentorship project.

I was inspired to suggest it after going through a mentorship program where more experienced actors were paired with younger actors trying to get into the business. I got so much out of it and I thought, “You know what? I wish I had this for navigating my differences due to autism.”

So I suggested it to my VOA manager and she took it and rolled with it. We just recently got started and other autistic people have been sending in questions to us. Individuals from the VOA board and membership who feel knowledgeable enough for each issue have been going on camera to film our answers. We’re hoping to have the videos be online with AIDE Canada soon.

For example, one question asked was about accessing post-secondary and finding a good institution that can support different ways of learning and different needs. I chose to answer that one and suggested that most schools will have an open house and that autistic students should go and talk to the teachers and see if they can envision being supported in that space.

I think it’s important that we progress from simply making people aware of autism to really increasing their understanding of autism.

Kayla in her role with the Voices of Autism self-advocacy group.

When people understand more about how another person’s brain works and what they are going through/what they have been through, they have a much easier time accepting that person. Whether that’s a person from a different community or culture, or a person whose brain just works a little differently, everyone is valuable.

This means changing the way that people are viewed and presented to the public. Often times, we look at individuals with differences from a “disability model.” This is where you’re constantly focusing on what people can’t do and attempting to change that about them.

Before I got my diagnosis, I went to an employment support centre, and got some testing to figure out what I would need out of a job, and where I would be be the most successful. But at the end, when I was talking with the lady that I was assigned to, she basically said, here’s a giant list of things that you can’t do. Now let’s find an employer who’s okay with this. It was discouraging. If she had approached me and said, we need to work around some things, but here are all the things you can do let’s find a job that suits that, I would have felt much more encouraged.

What we need in order for people to truly accept individuals on the spectrum and with other differences is a “capabilities model”. This means looking at what society can do to make things easier for those with differences. It means identifying what people are capable of and using that as a starting point for how we make change.

At CAN, every time I run into a barrier as a support worker, it’s not, “okay you can’t do this job then.” It’s, “we know you can do this job, so let’s figure out how we can navigate around it so that you can do what you do.” One arena I was working at had electrical problems one day and the buzzer was constantly going off. I’m sensitive to high pitched noises and I ended up shutting down in the change room after handing my kid off to another worker.

And afterwards, Robbie called me and we talked about what happened and he said, “Okay, in the future – here’s our plan. If that should ever happen again, hopefully it won’t, you are allowed to leave the ice, get your headphones, and wear them on the ice so that doesn’t happen in the future.”

It’s a small concession, but it allowed me to feel like I could do my job. And was really nice and I felt super supported where in another environment, I may possibly have even gotten fired for reacting that way.

Kayla working on a digital art project with a CAN participant at summer day camp.

As an actor, representation in film is important to me. The industry is slowly getting there but having more diverse individuals trained to work in film would it change that much quicker. There just aren’t enough programs willing to train and work with the differences of autistic individuals and others with diversities.

You shouldn’t have to mask who you are to make your dreams come true.

We need to increase opportunities for autism training and understanding in the film industry. If autistic individuals who are aspiring to work in film (whether it’s acting or behind the camera) aren’t understood and can’t get training themselves, it severely limits the opportunities available to them.

Beyond the film industry, there is an ongoing need to increase accessibility in all community spaces. I have also done some work consulting on accessibility with the City of Surrey. Through their partnership with CAN, they’ve done a great job working with capabilities by starting to make all of their buildings accessible – not just for physical differences, but for sensory differences as well.

Similarly, I love that many stores have sensory-friendly times. These are super helpful, as well. One concrete suggestion I would have is to keep the lineup dots on the floor, even after the pandemic. Often times, people don’t realize that many autistic individuals can get uncomfortable when strangers get too close. When lines get crowded and pushy, it can be overwhelming and uncomfortable even if you aren’t autistic. The lineup dots give people the space they need. And if someone isn’t on their dot, it easily gives you the authority to ask them for space.

Whether you’re in line at the grocery store, an aspiring actor, or simply trying to find a way to be comfortable in your own skin, you shouldn’t have to mask who you are.

That’s why I’m so proud to share my story, work for CAN, and be a part of groups like Voices of Autism.

It is only together that every child or youth on the spectrum and every autistic adult can have every opportunity to be who they want to be.


You may recognize Kayla as one of the nine autistic voices featured in our #AutismAcceptance video with EY this April:

For every comment or share of the video until Apr 30, EY will donate $2 to CAN! See the post on FacebookInstagramTwitter or LinkedIN!

Learn more about the voices featured in the video:

Corey: Growing up autistic

Natanya: “Autism acceptance means I have a job that I love”

Maxwell: “Listen to us and amplify our voices”

More from our #AutismAcceptance campaign with EY >>

 

April 28, 2021
by Corey Walker

I was diagnosed with Asperger’s Syndrome (now called Autism Spectrum Disorder) in my early 20’s in 2001. However, seeing as autism is a lifelong disability, I clearly grew up autistic; I just didn’t know it at the time. That’s not to say I didn’t receive any help or support as a kid. I was diagnosed with ADHD in Grade 2, so I was supported for that. Looking back, I think some of my challenges in life that required support were more due to my then-undiagnosed autism. In this blog post, I will share some of my life’s journey as an autistic with you.

First off, autism was not well known or understood when I was a boy.

In 1985, I was referred to BC Children’s Hospital, as my parents were trying to figure out what made me tick. You see, as a child I kept mostly to myself, and was content to play by myself for hours on end. I appeared to be hyperactive, rocking for hours on my spring horse. I also had gross motor skills deficits. My childhood doctors kept telling my mom that she was an “overpicky” mother, and my quirks would correct themselves in time. The doctors at Children’s Hospital diagnosed me with ADHD, and told my parents “I met all the signs of autism, except I could talk.” They missed the mark, and I would have to wait sixteen years before I learned I was autistic.

Now, before anyone goes criticizing Children’s Hospital, keep in mind this assessment took place thirty-six years ago, when knowledge of autism was far more limited, and the diagnostic criteria far more restrictive. Just like today. medical professionals can’t just make up their own diagnostic criteria, but are required to follow the criteria accepted as the standard by their profession at the time. I suspect my parents would be given very different answers if I was assessed today in 2021.

Despite not knowing I was autistic, there were supports even back then that helped me somewhat. I received therapy from the Child Development Centres in Quesnel and Fort St John. Therapists at both centres helped me improve my gross motor skills. I also received speech therapy at school in Fort St. John, and later Prince George (where I moved to in 1986 and still live today), and this helped improve my speech. We didn’t know then that it was autism that was causing my difficulties.

In school, I benefitted from extra time on assignments, and tests, including my high school final exams. This helped me succeed, and earn honour roll standing multiple times in both elementary and high school. English was my best subject, and math my worst. I never used any of that algebra they tried to teach me. With these supports, I graduated in 1996 with the rest of my peers, and went on to complete a BA in English and History at UNBC, graduating in 2003.

It was only after my Asperger’s diagnosis in 2001 that my parents and I fully understood my uniqueness.

I finally knew why in grade 2, I would run around the school playground, pretending to be He-Man, and why I played (and still play) with my pillow cases and shirts. This is only a few of the questions we finally had answers to. In case you’re not a child of the early 80’s, He-Man was a popular cartoon series and action figure from the early 80’s. I would pretend I was holding his magic sword and saying “By the Power of Grayskull,” which made him the most powerful man in the universe.

I paid my autism diagnosis little regard until November 2006 when I was expelled from teacher training, and had my life’s dream shattered. This was all because I made a rude comment that offended the classroom teacher who supervised me during my first practicum. Like many autistics, I often make unfiltered remarks. I’ve never sworn, but this trait has often landed me in trouble as an adult. It was never anything too serious, until then.

From 2007-2008, I attended college to improve my communication skills, and started becoming the autistic self-advocate I am today.

I started an Asperger’s support group in Prince George back around 2008 for AutismBC, and from 2012-2020, I worked for AutismBC as the Northern Regional Coordinator. During those almost eight years, I connected families and autistic adults with the resources they needed to thrive in life. From 2020-2021, I worked for the Sinneave Family Foundation, where I developed a toolkit to support autistic adults in employment.

Additionally, I helped plan the 2020 Canadian Autism Leadership Summit for the Canadian Autism Spectrum Disorder Alliance (CASDA), and in April 2021, I joined CASDA’s board of directors. I am also a passionate public speaker, and love presenting on autism to diverse audiences.

In October 2020, I started a short-term contract with CAN, where I led Project Relay, a series of online workshops to help employment service agencies learn how to better support autistic and intellectually-disabled job seekers during COVID-19.

Corey (left) was charged with assembling a team of experts to speak to employment service professionals from across BC.

This was definitely the most exciting job I had. I built a five member hub team of employment experts and self-advocates, who presented on various employment and mental health related topics during three virtual webinars, all held in February and March 2021.

I was motivated to lead this project because I wanted to ensure autistics were getting help to find work during the pandemic. I really enjoyed the collaboration between myself, and the larger team of hub team members, co-workers, etc. I love working with others, learning from them, and they from me.

If I was to give one piece of advice to self-advocates about educating others on autism, it would be to speak from the heart, and be honest about your experiences.

People want to hear your stories. Tell them what autism acceptance means to you. What it means to me is that I can accepted for being who I am. That is very important to me.

As we transition from awareness to acceptance, remember simply knowing about autism is not enough. We need to accept autistics for who they are, and embrace their uniqueness. Everybody is unique, and special in their own way. The best action we can take is to share our stories, and listen to others sharing theirs.


You may recognize Corey as one of the nine autistic voices featured in our #AutismAcceptance video with EY this April:

For every comment or share of the video until Apr 30, EY will donate $2 to CAN! See the post on Facebook, Instagram, Twitter or LinkedIN!

Learn more about the voices featured in the video:

Natanya: “Autism acceptance means I have a job that I love”

Maxwell: “Listen to us and amplify our voices”

More from our #AutismAcceptance campaign with EY >>

I’ve been accessing Canucks Autism Network (CAN) programs for almost a year now.

I thought about joining a couple of years back, but hesitated. I was busy with high school and was in a very bad place mentally and emotionally. But I’ve been making progress on healing and being in a better place.

Being with CAN has really been a journey, since I felt like I was entirely on my own beforehand. I joined last August near the beginning of the pandemic.

I thought, “How do I find people that are just like me?”

I had looked elsewhere, but was often found ineligible for different services and programs because I was deemed ‘high functioning’.

Before CAN, I had been paired with workers who had made me feel afraid to show my true Autistic self – that I could not understand social cues or that I experienced sensory overload. I felt like I had to stand up for myself and justify why I deserved to be respected as a human being at a young age.

I can make some eye contact and I can speak, so I was often made to feel like I should be able to move past those social and sensory challenges. It left me with way more emotional scars than I needed.  I felt helpless, scared and alone. Looking back on it, I would never wish it on anyone at all.

So when I joined CAN, I really had no idea what to expect. I joined their Youth & Adult Advisory Group, a group of individuals on the spectrum who provide feedback and insight on CAN programming. After the first session online, there was already a huge difference from what I’ve been used to.

I shared about how certain actions we see in the community can stigmatize Autistic individuals – how making us feel like certain behaviours are inherently bad can be very damaging. I didn’t get questioned or scrutinized for what I had to say. I actually felt as if my voice mattered, and that I was believed with no judgement or shame whatsoever.

“Autism acceptance means I’m part of a community that supports and listens to me.”


Maxwell is one of nine Autistic voices who took part in our Autism Acceptance Month video with EY.
For every comment or share of the video on FB, IG, Tw, IN during April 2021, EY donated $2.
 

Since the Advisory Group, I have joined a number of CAN programs, including the Skills Training Employment Program (CAN-STEP). The program is a 12-week paid opportunity for Autistic youth and adults. I was part of their first cohort this past winter. It took time to build back the confidence that I had shattered. But by the end, I had learned much more than what my five years of high school had taught me – and in a way that I can understand.

Maxwell (bottom right) on “graduation day” with CAN-STEP in March 2021.

The program also allowed me to reunite with a childhood friend, both online in CAN-STEP’s virtual classroom and in-person after the program. As part of CAN-STEP, I’ll be working with CAN as an office assistant starting this May. I’m looking forward to it, including working alongside my future colleagues!

Interested in joining the Skills Training Employment Program (CAN-STEP)? Visit canucksautism.ca/step to leran more.

The best way to support the Autistic community is to listen to us, amplify our voices and to be willing to work with the Autistic community to bring change, justice, and acceptance as a whole. 

As an Autistic person in the community, both online and in person, it’s both saddening and infuriating seeing certain groups stigmatize us – and then around April, act like they have our backs or speak for us just for their own publicity gain. We’re not here to be alienated and looked down upon. We’re human just like everyone else. We just need support and acceptance for who we are – not a cure or to be “solved like a missing piece of the puzzle.”

Yes, I’m proud of the first steps our communities are making right now. It’s a good thing to shift to “acceptance”. But now we got to continue to strive forward for continued change.

I’m glad to speak out on this month with the best of my ability. I’d like to end with a quote which I stand by to this day: “Nothing about us, without us.”


Read more from individuals on the spectrum:

Natanya: “Autism acceptance means I have a job that I love”

Sebastian: “Living a life I like”

Sylvain Formo: Changing my thoughts about autism

Jack speaks in front of entire school

Nate: “I want to help other kids like me.”

 

 

 

 

RETURN TO BLOG HOME >>

We believe every autistic individual has the right to meaningful employment. That’s why this past February, we held the first-ever CAN Virtual Job Fair!

Made possible with funding from the Government of Canada’s Opportunities Fund for Persons with Disabilities, the inaugural event was part of the national Employment Recovery Project.

The project began with an all-too-familiar question. How do we create a meaningful opportunity to engage with employers, while staying safe and physically distanced? After seeing the success of CAN’s new virtual programs, we looked to a similar online format!

Our Employment Services Team quickly got to work in the new year to bring together a diverse group of businesses, employment services agencies and programs over Zoom.

11 employers, including RBC and London Drugs.
12 employment organizations, like posAbilities and WorkBC.

View the full list of participating organizations >>

Interest and support came from all fronts, as our friends at Wavefront Centre for Communication Accessibility generously signed on to provide live captioning and ASL interpretations for all Zoom sessions.

With an exciting roster of groups eager to present their opportunities, we put the call out to our youth and adult members – Let 2021 be the year you kick start your job search! The response was immediate with over 150 registering.

With 29 presentations scheduled over the course of the month, the CAN Virtual Job Fair was organized week-by-week to simulate the employment journey.

The first week of sessions aimed to showcase resources to assist in the pre-employment stage. Groups like CI Employment and EmploymentWorks Canada showed job seekers how to access resources like job coaching and consultations. Meanwhile, Back In Motion led a series of workshops on resume building, interviewing and job search techniques.

“I checked out webinars from Orbital Learning and WorkBC. I really enjoyed both and took detailed notes,” said Andrew Sew, an adult job seeker.

“This is going to be very helpful in supporting my job search,” Andrew said.

After learning about groups that can support their job search, attendees heard directly from businesses with immediate opportunities, like KPMG and Ernst &  Young. And in the final week, job seekers attended a series of workshops that focused on long-term success in the workforce, like mental health and safety.

posAbilities were among the organizations that promoted their employment services to attendees via Zoom.Meridian Farm Market CFO Brody McDearmid was among the 11 participating employers. A longtime CAN supporter and champion for inclusive employment (2019 Autism BC Inclusive Employer of the Year), Brody was one of the first to sign up for the CAN Virtual Job Fair.

“There is a solid business case in hiring inclusively,” said Brody.

“Individuals with diversabilities have a lot to offer. We had a Q&A after our presentation and the group was so engaged and eager to learn more. It was a fantastic experience.”

Kyle Kozak, an Apprenticeship Advisor from the Industry Training Authority (ITA), was also quick to highlight how the digital platform still allowed for valuable interaction with job seekers.

“We were so pleased with the level of interest in the ongoing Zoom chat. I am eager to work with any candidates interested in starting an apprenticeship!”

While the majority of attendees were job seekers on the spectrum, we also welcomed parents seeking to support the employment journey. One of them was longtime CAN parent, Jo Sears, whose son Beau is a mainstay on the Vancouver Orcas hockey team.

“Every parent wonders what adulthood will bring for their child, and this is brought into sharper focus by an autism diagnosis.”

“Beau is in Grade 10 and his transition to adulthood is looming large. There are so many more opportunities and supports than I dared hope for. For years, I’ve been filled with trepidation, but this experience has left me so optimistic!”

The CAN Virtual Job Fair officially wrapped up on February 26. But for countless individuals on the spectrum like Beau and Andrew, their employment journey has just begun. We cannot wait to see how this month-long experience impacts our community in the years to come.

Check out CAN’s ongoing Employment Services! Personalized support for both job seekers and employers. Paid skills training and experience.

Thank you to everyone involved in making the first-ever CAN Virtual Job Fair such a success for job seekers and employers alike!


Full list of participating organizations

Employers:

Employment organizations:

Communication Accessibility: