Oct 25, 2018

This story was first featured by the Presidents Group, a network of change-driven BC business leaders who are champions or more accessible, inclusive workplaces.

“When I started working at Canucks Autism Network (CAN), I was shy and nervous about making mistakes. Today, I’m responsible for a variety of tasks – from inventory to data entry. The best part is that I get to help CAN families.” -Siobhan Doyle, Office Assistant

Siobhan Doyle is one of two young adults with autism who works part-time in the CAN office.  As a long-time participant who currently accesses CAN youth and young adult programs, she wanted to give back to the organization that had helped her. In turn, she has become an incredible asset to the team.

A passionate Vancouver Canucks fan, Siobhan first developed a level of familiarity and comfort with the organization and their staff as a participant. So when her Job Readiness Program at Douglas College tasked her with securing a practicum, she naturally reached out to the CAN office.

Like any employee, Siobhan entered her first job with a set of unique strengths and challenges. Joining the CAN office team as an administrative intern, her co-workers immediately recognized her exemplary work ethic.

In particular, Siobhan demonstrated a desire and aptitude to perform repetitive tasks that most staff would find monotonous. She was assigned to data entry, photocopying, filing and general administrative duties – all of which she completed with commendable focus.

However, as Siobhan recalls, it was not a seamless transition into the workforce. “I was mostly quiet and kept to myself. I was in a new environment, didn’t know my co-workers yet, and was nervous about making mistakes.”

A young adult woman sits an office desk
Siobhan in her first year as Office Assistant in 2014

Recognizing the need to ease Siobhan into the demands and nuances of office communication, CAN assigned her with a dedicated supervisor who was able to model proper social and workplace behaviour.

“What I would emphasize to other potential employers is that although I had an understanding of autism, I wasn’t an expert.” explained Amy, CAN’s Manager of Membership Services and Siobhan’s long-time supervisor. “More importantly, we approached Siobhan’s employment with open-mindedness and a willingness to try.”

Despite being an autism organization, CAN did not make assumptions about the type of support that Siobhan would need to succeed in the office environment. Understanding that she, like any other employee, is a unique individual with her own working style, they asked her directly what would help her succeed.

“It was really helpful to have written lists and visual step-by-step instructions on how to complete each task,” Siobhan explained. By providing her with a visual reference in addition to verbal instruction, Siobhan could work independently and refer back to tangible guidelines to confirm the expectations of the task.

By the time Siobhan’s practicum came to an end, she was invited to stay in a part-time capacity to continue contributing her skills to the team.

A group of youth and young adult women in green shirts pose for a celebratory group photo at an outdoor festival.
Siobhan (middle) also volunteers her time at key events, such as the CAN Family Festival in 2014 (pictured).

Among the many roles that she fulfills within the office today, Siobhan is responsible for compiling all coaches’ binders that go out to the 50+ CAN programs on a quarterly basis. Containing participant, staff and volunteer information, curricula, emergency procedures and more, the binder is a critical resource for the success of CAN’s province-wide sports and recreation programs.

When Siobhan isn’t occupied with administrative tasks in the office, you can catch her discussing her favourite Canucks players, reminiscing the most recent softball game (she plays on the office’s rec team), or inviting her co-workers out for a coffee run to Starbucks.

By investing additional time in Siobhan’s training, CAN was not only able to uncover her innate capabilities, they were able to benefit from her incredible work ethic, dedication and skill set. After nearly five years of working in the office, it is clear that Siobhan is a loyal and motivated employee who is delighted to be contributing to the overall success of the organization.

Canucks Autism Network is proud to have followed the lead of other inclusive employers and hopes that more organizations continue to pave the way towards workplace diversity.

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Dear Canucks Autism Network,

Since being diagnosed with autism at age 10, my son Mitchell has been a member of the CAN Hockey Program. This October marks his third season with the CAN Surrey Stingrays.

I have wanted to properly share my thoughts about CAN Hockey for some time now. From the coaches and volunteers to the unique dynamics and benefits of the program – each and every facet has been so fantastic.

But beyond the skill development and experience of playing hockey, this program has given us far more than we ever could have expected. At the tournament this past spring, I was struck by three experiences in particular that I wanted to share.

Mitchell (left) celebrates with teammates at their 2018 tournament in Kelowna.

The first was the genuine feeling of being a part of a TEAM.

Teamwork is a powerful thing. Something so many of these kids have been searching for. A place where they are actually a meaningful part of something bigger than themselves. A place where they belong. But the team doesn’t end with the kids. It extends to the families, which brings me to my second experience.

The undeniable support. And I don’t mean for the kids – CAN provides this in spades.  I mean between families.

Through practices, team fundraisers and time on the road, the Surrey Stingrays spend a great deal of time together. As a result, our guards are down, there is a comfort zone, and there is established trust. We have always shared the commonality of being parents of kids on the spectrum, but now we SHARE. We have become a support group for one another where we can speak freely and be more candid in our struggles than we might otherwise be.

And let’s not forget the siblings. Each player on the team has brothers and sisters who come out to watch them play. These sibling supporters have gotten to know each other too. And by doing so, they now have friends who truly understand what it is like to grow up with a sibling on the spectrum. Most importantly, they learn they are not alone. Like the parents, it is essentially another little support group.

The third scenario I witnessed at the tournament almost brought tears to my eyes.

After a shift, one of my son’s teammates returned to the bench visibly upset about something that had happened on the ice. From what I could tell, he was in full “shut down mode” and was going to require some focused intervention.

The MOST AWESOME part was that the intervention did not end up coming from the coaches or the volunteers. It came from the players, as a team. They all rallied around their dejected teammate, encouraged him, and turned the moment around. In an instant, the situation had been defused and the player was out on the ice for his next shift.

I cannot put into words what it is like to see my son be a part of a team like this. Mitchell always dreamed of playing hockey. In addition to making his dream come true, CAN has given him a second home where he feels welcomed and accepted.

CAN has given this to our entire family.

Gary and Mitchell Bryant at the Surrey Stingrays’ first practice of the 2018-19 season.

By offering CAN Hockey, you have created a very rare, very unique support group that has helped us in so many ways. Because Mitchell received a relatively late diagnosis, he missed out on a lot of intervention. We are still learning about what it means for him to have autism. Being able to share our experiences with families that we trust has been invaluable.

So when friends and family ask us what CAN hockey is all about – what the benefits are – I tell them this:

It is about 20 kids, desperate to belong, who have found a second home wearing the same jersey. It is about the irreplaceable community of support that every family member gets to be a part of. Beyond hockey, this program has a much deeper, far reaching impact than I could have ever expected.

This is something real special, folks. Thank you.

Sincerely,
Gary Bryant

Surrey Stingrays 2017-18 team (Mitchell fifth player from the left)

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Oct 18, 2018

The inaugural Canucks Autism Network (CAN) Pro-Am Hockey Tournament, presented by Modern Green Canada, is set to take place from January 25 to January 27, 2019, at the UBC Doug Mitchell Thunderbird Sports Centre and Rogers Arena, home of the Vancouver Canucks. In partnership with the NHL Alumni Association and Vancouver Canucks Alumni Association, the tournament will bring together former NHL greats with amateur players in support of CAN and families living with autism in British Columbia.

Themed as the “Best of BC”, the tournament will feature a uniquely local spin on the classic pro-am format, as each team will include a member of the NHL Alumni who was either born in BC or has competed for the Vancouver Canucks. As 2019 also celebrates the 100-year anniversary of hockey in BC, the CAN Pro-Am is of particular significance to the province’s historic hockey community.

To participate, players need to raise a minimum of $1,500 which will go towards the team’s fundraising total. CAN Pro-Am teams will have the opportunity to select NHL Alumni in the order of their fundraising ranking on Draft Night at The Imperial in Vancouver.

The following NHL Alumni will be draft-eligible, with additional NHL Alumni to be announced soon.

  • Dave Babych
  • Garth Butcher
  • Geoff Courtnall
  • Gerard Diduck
  • Thomas Gradin
  • Chris Higgins
  • David Jones
  • Jyrki Lumme
  • Kirk McLean
  • Dana Murzyn
  • Cliff Ronning
  • Raffi Torres
  • Kyle Wellwood

“We are very proud to announce the upcoming CAN Pro-Am,” said Glenn Healy, Executive Director of the NHL Alumni Association. “We know there is strong community support in Vancouver and we look forward to making this an annual success.”

The weekend will also feature a Hot Stove Lounge and Luncheon, where attendees will gain a unique insight about life in the NHL while enjoying a first-class lunch catered by Chef Robert Bartley in the Captain’s Room at Rogers Arena.

“The Vancouver Canucks Alumni Association is proud to be part of this wonderful fundraising initiative that supports one of our key beneficiaries,” said Bob Murray, President of the Vancouver Canucks Alumni Association. “Having a Pro-Am with NHL Alumni in Vancouver is a huge plus for the game of hockey and to the families who benefit from Canucks Autism Network programs throughout BC.”

Funds raised from the 2019 CAN Pro-Am Hockey Tournament will support the delivery of CAN’s sports and recreation programs for children, youth and young adults with autism. An estimated 1 in 66 Canadian children is diagnosed with autism and over 16,000 are impacted in BC alone.

“The CAN Pro-Am Hockey Tournament represents a unique and valuable opportunity,” said Paolo Aquilini, Vancouver Canucks Co-owner and Canucks Autism Network Co-founder. “While tournament participants spend the weekend making lifelong memories, funds raised will help ensure that individuals with autism province-wide will also have the opportunity to enjoy the thrill of sports.”

For more information, or to register your hockey team, please visit www.canproam.com.

Aug 2, 2018

By Keara Farnan

As a 22-year-old woman on the autism spectrum, I have certainly faced extremely challenging situations throughout my life and still continue to.

I live with significant social anxiety and depression. I’m not the most confident person, so trying to lead a normal social life is a challenge. Making conversation is quite difficult for me as I’m never sure how to approach new people. Growing up, I was rejected by many individuals who did not care to understand what having autism meant. I lived in a state of constant distress and agitation – often hanging out alone and waiting for the phone to ring.

Excluded by my peers, I questioned my self-worth and whether it was okay to have autism. However, over time, I have learned to appreciate who I am. Someone once told me, “No one can make you feel inferior without your permission.” And I believe this to be very true.

In addition to improving my self-image, I’ve learned that I can also help manage my anxiety by doing the things I love. For me, these things include writing, working out and being a part of the Canucks Autism Network (CAN) community.

I’ve been a CAN participant since 2011 and even began volunteering for the organization a few years later. CAN is my safe place, because I’m free to be whoever I choose and everyone accepts me for who I am.

One of my most cherished memories is the first time I went to CAN Overnight Camp in the summer of 2016. I was quite nervous to be away from home, especially since there were many CAN participants I didn’t know very well. But paired with an extremely understanding support worker for the entire weekend, I felt so at ease. She was kind and non-judgemental about the social anxiety that I struggled with. With her support, Overnight Camp was among the most memorable experience of my life. The weekend was packed with activities, but my favourites were archery and making paracord bracelets.

A female support worker and young adult female camper sit together while making paracord bracelets.

While Overnight Camp has given me a weekend that I can fondly look back at, CAN’s year-round social programs have provided me with a regular way to stay involved. In North Vancouver, the Weekly Social Group allows me to get to know CAN staff, volunteers and participants over the course of 6 weeks in the Fall, Winter and Spring. By meeting weekly with the same group of young adults, I feel more confident in building rapport and developing healthy relationships. Playing games like Family Feud gives me an opportunity to get to know other participants and practice my social skills.

Most importantly, having fun with other young adults with autism has helped me to see that I am not alone – it’s wonderful to see that there are others who share my struggles. Though our challenges may differ, we all have autism in common.

In addition to being involved as a participant, CAN has also given me the opportunity to volunteer at their community and family events. As I continue to mature into adulthood, I want to find more ways to incorporate CAN into my life. By volunteering at events like Family Concerts, Party in the Park and Easter Tea House in Stanley Park, I can also give back.

I see a huge difference in myself since joining CAN seven years ago. I’m more responsible and open to conversation with others who share my diagnosis. I’ve made friends who I spend time with outside of CAN. Forming friendships outside of CAN still startles me, but I realize that if I avoid social interaction altogether, I’ll only delve deeper into my anxiety, instead of overcoming it.

Two female youth sit together while crafting.

Through a lifetime of experience, I’ve become naturally distrusting of others. But because CAN’s staff and volunteers have been patient with me, I’ve learned to open up and engage others in conversation more and more.

My experiences at CAN have helped me go out of my comfort zone to do the things I love in my community. Exercise helps me feel calm and release anxiety. Since 2015, I’ve been working our regularly at Club 16 in North Vancouver. The staff there accept me for who I am in the same way that CAN staff and volunteers do. They treat me no differently than any other member, which is the kind of respect I wish more people would show me.

I realize that my life is always going to be a challenge, because having autism isn’t easy. There’s never a day where I don’t experience challenges and setbacks – and wish to be a neurotypical girl. I may have trouble making friends, developing romantic relationships, and finding a job. But that doesn’t mean I’m going to give up.

I yearn for acceptance from others who do not understand autism, but I’ve learned that I’m not able to control how others perceive me or treat me – only how I view myself.

I wanted to share my story because above all, I find strength in writing. It helps me let go of negative thoughts. And I find great importance in being able to properly convey my experience – and it’s much easier for me to write than to speak with others. Words are powerful.

I have been recently published on numerous occasions in The Mighty, an online community for individuals with disabilities. My articles have addressed my challenges trusting others, making friends and my sensitivity to touch.

I am currently working on several other pieces, including the challenges of dating, and aspire to write a memoir detailing my experiences as a woman with autism. Through my writing, I hope to inspire others to tell their story and speak openly about their challenges.

I can’t wait to share it with the CAN community.

Later this month, Keara will be participating in the CAN Youth & Young Adult Advisory Group’s first meeting to discuss the future of our programming for participants aged 13+. If you are a youth or young adult CAN member and would like to participate, find more details and RSVP on our online form!

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Jul 26, 2018

Endless sunshine and a desire to give back made for a fantastic day on the links this past Saturday in Kelowna. Presented by Scotiabank, over 100 golfers came out for the 17th Annual Kelowna Rockets Golf Tournament, raising vital funding for Canucks Autism Network (CAN) programs in the region.

With an early afternoon start, participants had the exclusive opportunity to golf and dine alongside dozens of Kelowna Rockets alumni. The former WHL players in attendance included current NHL stars Shea Weber, Josh Gorges and Luke Schenn, among others.

Stationed on the course at hole 16, we were on hand to provide golfers a fun break from the friendly competition. Given the hockey-themed flavor of the event, CAN staff challenged participants and Rockets alumni to a “saucer pass” contest.

A man shoots a hockey puck into a miniature net on a golf course.

On their way to the next hole, golfers also had the opportunity to enter our WestJet Gift of Flight Raffle, while learning about CAN programs from our staff.

Purchase your raffle tickets for WestJet’s Gift of Flight online now!

Later that night at the event dinner, CAN’s Manager of Strategic Partnerships, Ryan Yao, shared more about the importance of the event to our efforts in Kelowna.

“With 1 in 66 children diagnosed with autism in Canada, and over 1,000 in the Okanagan region alone, the need for support is growing,” Ryan explained to the room full of golfers and alumni. “Since 2015, we have been so fortunate to have the generous support of the Kelowna Rockets and Rockets Alumni Foundation. Their shared commitment to our mission has been integral to the delivery of our programs in this region.”

On behalf of all our staff, volunteers and families at CAN, thank you to the organizers and participants of the 17th Annual Kelowna Rockets Alumni Golf Tournament.

Because of you, hundreds of children, youth, young adults and families living with autism in Kelowna can learn new skills, develop friendships and make lifelong memories at CAN programs.

Learn more about how you can help at canucksautism.ca/support!

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Jul 20, 2018

Earlier this month, Science World hosted “Community Access Day” for individuals and families with autism across the Lower Mainland. Offering free admission, Science World hosted hundreds of Canucks Autism Network (CAN) members throughout the day.

Children, youth and young adults with autism, along with their families, explored Science World’s full range of attractions — igniting their imagination through exhibits like The Science Behind Pixar and the award-winning Ken Spencer Science Park.

Jili and her son were among the CAN members who attended last week’s event. “This was my first opportunity to visit Science World with my son,” Jili explained. “It’s such a great place for him, because there are so many things for him to see. He loved being able to see for himself what a tornado looks like. And the staff are so helpful. We already bought a membership!”

Among Science World’s core values is a commitment to both collaboration and inclusion. At CAN, we are dedicated to improving accessibility for individuals and families living with autism in all community spaces. That’s why for the past three years, we have partnered with Science World to bridge the gap for individuals with autism to experience the wonders of science and nature.

In addition to their Community Access Days, we have partnered with Science World to develop accessibility resources, host autism-friendly events and provide staff training. It is no secret that Science World has been a leader in igniting wonder within the Vancouver community. With numerous initiatives over the course of several years, it is clear that they are also on the leading edge for increasing accessibility and inclusion.

Science World Activity Storybook
During Autism Awareness Month in April 2016, CAN and Science World collaborated to create an Activity Storybook for individuals with autism that may wish to visit the venue. Designed to increase predictability, the Activity Storybook outlines what individuals with autism can expect from a visit to Science World. Check out “I CAN Visit Science World” for your next trip!

Cover photo of "I CAN Go To Science World" activity storybook.
The Science World Activity Storybook illustrates the process of visiting the facility, from paying for your pass to what each exhibit entails.

Science World staff training
With a desire to better support individuals with autism that walk through their doors, Science World reached out to CAN to receive autism training. In January 2016, our training team visited Science World to deliver a customized autism training workshop on site. The dozens of Science World staff and volunteers in attendance received an introduction to autism and a wide range of support strategies and tips for better interacting with individuals with autism. Learn more about CAN autism training workshops.

A woman speaks at a podium beside a projector in front of a seated audience.
CAN staff have delivered autism training workshops to Science World staff on multiple occasions since 2016.

Monthly Social Programs at Science World
With the assurance that Science World provides a safe and supportive environment for individuals with autism to visits, CAN has hosted countless Monthly Social Program events over the past several years. In groups of 10, our youth and young adult participants have enjoyed the countless exhibits with the support of our staff and volunteers.

Meanwhile, our CommunityWorks! Canada ® program, which provides volunteer opportunities to youth and young adults with autism, has also visited Science World on a number of occasions to assist their staff with various tasks. These visits have provided them with valuable volunteer experience with a well-known organization in the community.

A male adult supervises as a male youth sits by a computer.

Having partnered together to create resources, provide training and host events, Science World and CAN co-presented on “Creating Opportunities for Accessibility” at the 2017 Lower Mainland Museum Educators (LMEE) Conference.

Organizations like Science World are committed to accessibility and inclusion, and are key partners in CAN’s vision that individuals with autism are understood, accepted and supported in all community spaces.  If you are a similarly-minded organization or community group that would like to learn more about increasing accessibility for your guests, we would love to hear from you!

CAN supports accessibility in a wide variety of public spaces by providing consultations and creating customized solutions. These can include, but are not limited to 1) staff training, 2) developing accessibility resources (such as the Activity Storybook), and 3) partnering to co-host autism friendly events.

To learn more about accessibility at Science World, visit scienceworld.ca/accessibility.

To learn more about partnering with Canucks Autism Network to make your organization more accessible for individuals with autism, contact our Manager of Training, Hallie Mitchell, at hallie.mitchell@canucksautism.ca or 604-685-4049 ext 219.

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May 25, 2018

Canucks Autism Network (CAN) is thrilled to announce that Robbie Hsieh has joined our office team in the position of Diversity and Inclusion Coordinator.

In this newly-created role at CAN, made possible through a generous multi-year grant from the North Growth Foundation, Robbie will be working alongside volunteers and staff with autism or other identified barriers to employment. This will include creating accessible recruitment processes for new applicants, creating supportive employment opportunities and developing youth and young adult programming focused on leadership and personal development.

To support these new initiatives and the evolution of CAN’s current youth and young adult programs, Robbie will be working in partnership with CAN’s new Youth Advisory Committee (stay tuned for further details on this new committee).

Robbie brings with him a highly extensive background working in CAN programs and a wealth of experience facilitating employment opportunities in the community.  Robbie first joined CAN as a volunteer in 2012. In the six-and-a-half years since, countless children, youth, young adults and families with autism have benefited from Robbie’s enthusiasm and expertise as both a program staff and volunteer.A male child and a male adult pose for a photo on an outdoor field.

Outside of CAN, Robbie previously worked for Open Door Group as Associate Program Director, connecting numerous individuals with disabilities to successful job opportunities.  Robbie is also currently a Social Innovation Fellow at RADIUS SFU, where he is working with other local change makers to address challenges in refugee and newcomer settlement and integration, health promotion, the future of education, and the future of work in Vancouver.

As CAN celebrates its 10th anniversary of creating barrier-free and accessible environments for individuals and families with autism across BC, we are thrilled to be expanding these efforts within our hiring processes.

“I am extremely excited to be joining CAN in this position,” said Robbie. “CAN’s vision is for every individual with autism to be understood, accepted and supported in all community spaces, and I am very excited to work alongside individuals with autism to advance our employment and leadership initiatives to further this vision province-wide.”

Robbie’s work will also extend outside of our walls, as he works with community partners to share CAN’s knowledge about autism in the workplace and facilitate bridging opportunities for community placements.  Robbie has already initiated conversations with a number of community groups and is eager to connect CAN’s volunteers and staff to other exciting opportunities in their local communities.

In all of these activities, Robbie looks forward to working closely with all key stakeholder groups, including CAN’s Youth Advisory Committee, other self-advocates, community partners, and supporters of accessible employment across the province.

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Karen Owen and her two sons, Oliver (right) and Alex (left) wearing their #JerseysForHumboldt earlier this month.

Apr 17, 2018

Like many Canadians this month, my family has struggled to come to grips and understand the tragedy in Humboldt.

We put our sticks by the door and left the light on. We wore our jerseys in solidarity.

But unlike many families, explaining the “why” and the “how” to our boys involved a few extra layers.

We are a very proud hockey family. In addition to that, we are also a proud Canucks Autism Network family.

Two of our three boys have autism. Both are hockey players for CAN’s Vancouver Orcas. Our middle son, Oliver, has played wing on the Orcas for four years, while our youngest, Alex, is in his second year – his first as a goalie.

Explaining the tragic events in Humboldt and the many lives lost was met with quiet reflection and tears in our household.

I want to share the story of how my youngest first became a part of this nation-wide hockey community that has come to the forefront this month – and what happened when he was inspired to wear his jersey on April 12.

When Alex first started skating lessons at CAN, he would not even put his foot on the ice. It took three CAN volunteers to support him while kicking, screaming and crying. I was so frustrated because I knew how much he wanted to skate like his brother – to play hockey like his brother.

When we got home and he had calmed down, I asked him why he would not go on the ice. He let us know very clearly that he would not go on the ice without hockey gear like his brother.

From that day on, he excelled in the skating program. In full gear, mind you – and without tears and with a new determination. When he was old enough, he too was accepted on CAN’s Vancouver Orcas team and eventually found his calling as a goalie.

That was two years ago. Fast forward to this month when Alex learned the Humboldt Broncos lost most of their team and their two goalies. When it came time to get our jerseys to wear the next day at school, I gave him the choice of his Vancouver Canucks or his Vancouver Orcas jersey.

“I am the goalie and I am going to wear my team goalie jersey,” he said.

I dropped him off at school and lingered on the playground before the bell. I noticed a group of boys from his grade call him over.

I sucked in a breath, not knowing how his Orcas jersey would be perceived in the playground full of Canucks jerseys. As a mother of a son with autism, watching your child have meaningful interactions with other kids can be a rare experience. And a stressful one too.

I watched as Alex’s classmate pointed to the jersey my son was wearing. Alex explained how he plays goalie for CAN’s hockey team.

The other boy unzipped his own coat, showing Alex the jersey he wore for the team he plays for too. He gave Alex a high five and invited him to play with him and the group.

This level of inclusion had never happened before for my son. In that moment, I realized just how much of an equalizer hockey truly is.

You do not have to be a hockey family to be impacted by the events in Humboldt. But in the same way that hockey inspired something so groundbreaking for my son, this past month has shown how hockey can inspire an entire nation to provide a community of support.

On behalf of my hockey family and everyone at Canucks Autism Network, Humboldt remains in our thoughts – we stand with you.

#HumboldtStrong

-Karen M. Owen, Hockey Mom

The Humboldt Broncos GoFundMe campaign remains open until midnight tonight (Wednesday, April 18). As per campaign representatives, “an advisory committee is being established to make a recommendation for the allocation of these funds, which will be held in trust until that allocation occurs. Once donations to the GoFundMe are off, people who still want to help can contact the Broncos here: https://humboldtstrong.info/contact/

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Apr 17, 2018

Every year, Canucks Autism Network (CAN) invites our volunteers to apply for one of four $500 scholarships to access ACT-Autism Community Training workshops.

Applicants are asked to share why they volunteer with CAN and why they want to receive funding for additional autism training.

Among the four recipients this year is Kyle Boyle. Since 2015, Kyle has volunteered in CAN’s Overnight Camps, Skate and Hockey programs, as well as at Fundraising Events, Family Events and in the office. After becoming a CAN support worker, he still continued to volunteer in our programs and events.

Here is Kyle’s volunteer testimonial:

***

When I was 10 years old, I used to play hockey in my driveway and pretend I was Markus Naslund. When I went to hockey practice on Saturday mornings, I would pretend I was Trevor Linden prepping for a game. As I grew older, I realized not everyone grows up sharing these similar experiences.

This is why I began volunteering for Canucks Autism Network (CAN).

The most meaningful experiences I have had while volunteering with CAN are found in the small moments. They are in the smiles of the 18 kids stepping onto the ice every Saturday morning.

A youth hockey team and their coaches pose for a team photo.
CAN’s Vancouver Orcas at the 2018 Special Hockey Tournament in Kelowna. Kyle in top row, third from left.

They are the moments when the fastest, most skilled player on the team stops on a clean breakaway and passes to a player lagging behind so he has the chance to score his first goal.

They are in the moments in between plays when you’re learning about your participant’s favourite animal or their fascination with Zambonis.

They are in the moments when parents recognize the CAN logo on your jacket while you stand in line for coffee and tell you how much CAN has impacted their family.

It’s these small moments that make volunteering for CAN such a special and rewarding experience.

From what I can tell, it’s small moments such as these that makes CAN so meaningful for the families too. Earlier this month, I traveled with the Vancouver Orcas (one of CAN’s two adaptive hockey teams) to Kelowna, where they participated in the annual adaptive hockey tournament.

When I was a kid, my father would take me to Tim Hortons after every hockey practice for a chocolate croissant and a chocolate milk. (As you can tell, I love chocolate.) Growing up with sisters, I always looked forward to those moments when it was just me and my old man.

During the tournament in Kelowna, I had the privilege of having a long conversation with one of the hockey dads. He told me how he shares a similar tradition with his son – Timbits after every CAN practice. His son’s favourite? Chocolate.

For me, spending time with my dad was the best part of playing hockey. It is so humbling to be a part of making that experience a possibility for CAN families too.

It is amazing to see how CAN impacts families beyond the successes on the ice. Every week at CAN, I get to see the enormous impact that the proper level of support can have on a child with autism. And as a graduate student at UBC, I get to look forward to how my experience at CAN will benefit my future career in health care. Having developed the necessary skills to support children with autism, I hope that I can – at least in part – fill a gap in the healthcare system in BC. Be a missing puzzle piece, if you will.

Although I was asked to share my own personal experience volunteering, CAN has never been about the individual. As such, I contacted other members of CAN’s volunteer family and asked them what the bright green Canucks Autism Network volunteer shirt means to them.

I’d like to share a few of those comments. One individual said, “it represents giving hope for children with autism to play sports and be involved in their community.”

Another said “dedication, passion, positivity, and the burning desire to make a difference in the lives of children and families living with autism.”

For me, it’s ensuring that every kid in CAN’s hockey program gets to step on the ice and pretend they’re Bo Horvat or Brock Boeser. It’s helping facilitate the bond between a father and son that hockey can make possible.

And for all the participants in CAN programs, I hope that when they see the green volunteer t-shirt, it means that they see a friend.

Kyle at Overnight Camp in 2015 — his first experience volunteering with CAN.

Learn more about volunteering with CAN at canucksautism.ca/volunteer.

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Like countless BC teens, seventeen-year-old Kourosh Ershad grew up a huge Vancouver Canucks fan.

“I remember Kourosh watching the Canucks in 2011,” recalled Kourosh’s dad, Farzad. “He was mesmerized. Since then, he wanted to be involved with sports in any way possible.”

Since then, Kourosh dreamed of playing hockey. But as a child with autism, Kourosh faced a number of challenges to participate in sports and rec in the same way as his typically-developing peers. While there is significant variability among those who share the diagnosis, the core difficulty with individuals with autism is social communication.

“Kourosh is high-functioning, but as a boy who started talking at 7 years old, comprehension and communication were always a huge challenge for him,” Farzad explained.

Because of these difficulties, children with autism often benefit from coaches and teachers taking the time to break down and repeat their instruction.

Enrolling Kourosh in a typical sports program meant throwing him into a fast-paced environment that he was likely unprepared for. In order to enjoy the thrill of sports he was fascinated with, it was clear he needed close attention and individualized support.

It was not until the Ershads found Canucks Autism Network (CAN) that they began to see a path for Kourosh to achieve his dream.

Since 2008, CAN has successfully delivered a wide range of sports and recreation programs to children and families with autism across BC.

The non-profit organization was founded ten years ago by Paolo and Clara Aquilini, co-owners of the Vancouver Canucks. Like Farzad, their son was diagnosed with autism and they identified a void in the community for high quality sports programs that met the unique needs of children with autism.

At CAN, Kourosh benefited from one-to-one support from highly trained staff and dedicated volunteers in weekly soccer and ice skating programs. “It was so important that Kourosh was never alone,” Farzad explained. “He always had a CAN instructor by his side, receiving the close attention and constant communication that he needed.”

As his skills progressed in the skating program, it was time to put a hockey stick in his hands. In October 2015, Kourosh joined the Vancouver Orcas, one of CAN’s two adapted hockey teams. Through CAN, Kourosh could realize his dream of playing hockey.

Kourosh not only learned the basics of passing, stickhandling and shooting, he was taught the nuances of interacting with his peers and teamwork — social skills that are invaluable for children and youth with autism.

Kourosh thrived. Week after week for two years, his confidence grew.

Ryan Yao, CAN’s Manager of Strategic Partnerships, coordinated the hockey program during Kourosh’s time with the Orcas. “He was such a positive presence in the locker room – always laughing,” recalls Ryan. “He became a leader and someone that his teammates truly looked up to.”

In April 2017, Kourosh travelled with the Orcas to Penticton for CAN’s annual hockey tournament. Playing against other adapted teams from across BC, Kourosh scored two goals in one of the tournament games and was named MVP.

Following the tournament, Kourosh challenged his parents to make a pivotal decision. With years of experience in CAN programs at his back, he was ready to compete alongside typical peers in the North Vancouver Minor Hockey Association (NVMHA).

This past September, Kourosh signed up for his local bantam team. To his family’s surprise, the new team was led by a coach that had previously worked with CAN. Kourosh’s new coach was able to work with the Ershads to ensure a smooth transition from CAN’s adapted setting to the relatively less-supported environment of a minor hockey team.

When Kourosh first joined CAN, he needed constant supervision to participate. Equipped with the social and athletic confidence gained through CAN programs, he has successfully transitioned to a typical sports environment in his community.

At the conclusion of his first season with North Vancouver Minor, he recorded 3 goals and 21 assists. Of those 24 points, he registered 5 points in the playoffs, where his team finished second.

Kourosh is living his dream and showing no signs of slowing down.

Kourosh and the Vancouver Canucks game-day program featuring this story.

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