April 24, 2020

#WeBelieve that every individual with autism should be supported during important transitions into adulthood.

Sebastian Ralphs is not only one of our longest tenured participants – he is one of our most active volunteers! He has used a lifetime of experiences to build confidence, gain life skills and secure meaningful employment. This is his story.


“Living a life I like”

Hi, I’m Sebastian Ralphs. I‘ve been a Canucks Autism Network (CAN) member since it was founded in 2008. First, I was a participant. Then in 2014, I became a volunteer to help other kids with autism. I’ve done so many fun things and learned so much at CAN. Let me tell you about it!

My family and I first heard about CAN from our neighbours, whose daughter worked there. My first activities with CAN were horseback riding at a stable in Southlands and golfing at the driving range with a golf pro.

These experiences were programs that were piloted in CAN’s early years before we shifted our focus on our current sports & rec offerings. Sebastian has been with us for a long time!

I did a lot of summer camps with CAN which helped me be more confident with things like high ropes and rock climbing. I was a little scared with those at the beginning, but the staff and volunteers helped me. I did many years of soccer and swimming until I moved on to CAN’s youth and adult programs.

Sebastian at 14 years old with his friend Tilman. CAN Overnight Camp in 2011.

One of my favourite programs was the CAN music program with the Sarah McLachlan School of Music. I was in the first-ever class that was offered. And that made me happy because I love music. I met new friends and also my first girlfriend in the music classes.

We learned to sing as a choir and also play percussion. Our choir sang at the first CAN Reveal Gala, and we sang “Ice Cream”.

I even shared a microphone with Sarah McLachlan herself!

I was able to do the music program for two years as a participant – and then two more as a volunteer.

My mom first told me about the opportunity to volunteer with CAN back in 2014. I really wanted to do it so I could help other kids with autism. My first volunteer position was at the soccer program. I only expected to do things like set up and take down equipment.

So I was happy that I got to lead warm-ups and stretching and demonstrate skills that I had first learned as a participant.

I have been a volunteer in the Explore Volunteering program, where I helped other youth and adults with autism with various tasks, like making a forest trail and stocking clothing at the Union Gospel Mission Thrift Store.

This program is for youth and adults with autism to sample volunteer opportunities in the community. As an experienced volunteer already, Sebastian helped out in a ‘peer support’ capacity, providing a positive role model for our participants!

Sebastian has additionally participated in one of our first two Translink Accessibility Tours for youth and adults with autism. View video of the first CAN x Translink Accessibility Tour.

I’ve also really enjoyed volunteering at many community events, like CAN’s info booth at Canucks games, family events like Sports Day and fundraisers like the Reveal Gala. I see so many friends and people I know from so many years at CAN.

I’ve been able to do so many fun things, like being a people greeter, assisting at information booths, giving kids stickers and demonstrating games to kids.

CAN has helped me be more social and confident in connecting with other people.

Volunteering with CAN even helped me get another volunteer job as a Sun Run clinic leader at Dunbar Community Centre for the last 4 years. My volunteer experience also helped me get a paid job at Vancity Credit Union.  I’m not doing any of my jobs now because of the pandemic, but hopefully it will end soon.

I am proud that I have these jobs. CAN is helping me have a life I like!


Read more

Volunteer Spotlight: “Be friendly to one another”

Behind the scenes with the Reveal Gala choir

Sylvain Formo: Changing my thoughts about autism

Former hockey player gives back at CAN skate

Return to CAN Blog

April 22, 2020

It’s been a couple of years since we moved our headquarters to the Kitsilano neighbourhood in Vancouver.

But for years, we called the corner of Yukon and 2nd home. And just across the street is where our office staff got their daily caffeine fix at Starbucks. It wasn’t long before Store Manager Ann-Marie Lee-Teahen knew virtually the entire Canucks Autism Network (CAN) office team by name.

Although we’re no longer immediate neighbours, our friends at Starbucks remain CAN supporters who we are proud to celebrate this National Volunteer Week.

“When I became the community lead in my district, I reached out to CAN for volunteer opportunities,” said Ann-Marie.

“At that time, one of the managers in our district, Evelyn Campbell was a CAN mom.”

“Through CAN, her son Logan has been enrolled in so many sports and social programs. He has come leaps and bounds!”

As a group, Ann-Marie, Evelyn and their fellow baristas began volunteering in our office to help organize and prepare our program supplies. Ann-Marie even donated her time to support our Weekly Youth & Adult Program for a season.

“I received training and learned so much from the program with respect to understanding people with autism,” Ann-Marie said.

Our neighbours across the street were eager to contribute more to our community. So when we asked them to put up some posters to promote our CAN Family Festival in 2016, Ann-Marie got the idea to get involved with our events as well.

Hundreds of families needing to stay warm at our annual Festival of Lights at Van Dusen?

Starbucks was there.

Hockey players arriving early in the morning for an 8am game?

Starbucks was there!

Over the past six years, Starbucks has volunteered at CAN Family Festival, CAN Relay 4 Autism, CAN Festival of Lights and most recently the CAN Pro-Am.

And at each event, they were on hand bright and early or late at night offering a warm smile and a free coffee or hot chocolate!

But their incredible contributions don’t stop there. Through the Starbucks Foundation, Ann-Marie and her South Central Vancouver Starbucks District have donated a total of $3,000 to support CAN programs, training and community engagement initiatives.

Like many businesses, most Starbucks locations are closed due to the current health crisis. And our hearts go out to the many store managers, baristas and all those who are waiting to get back to work.

But knowing how committed they are to giving back, it came as no surprise that the Starbucks at Yukon St and 2nd Ave remains open to frontline workers.

Photo from Starbucks Stories Canada

Ever since our new life of social distancing began, Ann-Marie and her team have been serving free coffee to the many first responders and health care workers in their neighbourhood, including those from Vancouver General Hospital and Vancouver Police Department headquarters.

“It has been a very fulfilling experience, ensuring that our first responders can be the best they can be,” said Ann-Marie.  “If only through a cup of coffee.”

For most, a good day begins with a cup of coffee. For us, our daily lattes and cappuccinos turned into a friendship we have treasured for over six years and counting.

Thank you, Ann-Marie and Starbucks!


Read more

Volunteer Spotlight: “Be friendly to one another”

Vancouver Foundation: Extending CAN’s impact in Nanaimo and Kamloops

Return to Blog Home

April 20, 2020

 “No matter what, Nina shows up with her bubbly, positive personality. You can’t help but feel happy when she’s around!”
-Kayla Ungaro, CAN Regional Coordinator in Kelowna

This National Volunteer Week, the spotlight is on our incredible BC-wide team in green. What motivates them to give back? What are their favourite memories supporting our participants and families?

We have seen their impact every day in our programs and events ever since we began in 2008. We can’t wait to share their stories with you all week on social media!

Today, we are excited to celebrate Nina Gaspari in Kelowna.

Outside of her busy schedule working at a restaurant and studying biochemistry at UBCO, Nina has dedicated countless week nights and summer days to CAN. In two years, she has volunteered in Gymnastics, Active, Multisport, Weekly Youth & Adult Programs and Summer Day Camps.

Learn more about becoming a CAN volunteer!

“I remember checking in with Nina after her first couple of weeks volunteering,” recalled Kayla Ungaro, CAN Regional Coordinator in Kelowna. “She beamed with excitement that volunteering at CAN was the highlight of her week!”

“Some individuals have an innate ability to connect with participants and be that positive part of their week – that is definitely Nina.”

You’d think it was enough that Nina was finding time to support our program every week. But despite her busy schedule, she went above and beyond last summer. Joining up with fellow CAN volunteer and personal friend Morgan Painchaud, the duo helped organize a benefit concert at the OK Corral. Featuring local Okanagan talents like Ben Klick, Hillside Outlaws and Michael Daniels, Country For CAN raised over $2,500!

We are so lucky to have such enthusiastic volunteers who support our programs with such passion. What drives Nina to dedicate so much time for our participants and families?

“My intention is to demonstrate how to be friendly to one another. I want to help create an environment where CAN participants feel they can try something that they wouldn’t normally do.”

“So any time a child, youth or adult is able to interact with another one confidently, it puts such a big smile on my face.”

In just two years, Nina has volunteered in over 30 weekly sessions at CAN. Among her many hours supporting our participants, she shared with us one of her favourite memories from our Multisport program.

“During the basketball lesson, we were playing pass. The kids were originally paired up with staff and volunteers. But part way through the lesson, one of the kids asked another if he would play pass with him instead,” Nina recalled.

“Although this seems like a very small thing to do, it made me so happy that he had developed the social skills to reach out to a fellow peer.”

This past Winter, Nina took her skills for building social connections among participants to our Weekly Youth & Adult Program.

“I absolutely love playing games and chatting with them,” Nina said. “They are always challenging my perceptions on many things and I always find myself looking forward to the next one.”

The world needs more people like Nina. Lucky for CAN, we have hundreds who share her genuine passion for supporting kids, youth and adults with autism.

While our in-person programs are on hold for the time being, it goes without saying that our CAN volunteers are missing our participants and families immensely.

Learn how we are continuing to support our CAN community during COVID-19 at canucksautism.ca/homeactivities.

“I am so appreciative of what CAN is able to do for so many families,” said Nina. “It is so nice to see how these kids and youth look forward to coming to see us each week — just as much as we look forward to seeing them!”


Additional reading

Former hockey player gives back at CAN skate

Meet Siobhan: CAN participant & part-time employee

Kyle Boyle: Why I volunteer for CAN

Additional info

What kind of training to CAN staff and volunteers receive?

What is each staff and volunteer’s role in CAN programs?

Become a CAN volunteer!

Return to Blog Home

Jun 12, 2019

At the 2019 Canucks Alumni Charity Golf Tournament, Sylvain Formo delivered this speech in front of a room of former NHL players, tournament participants and guests.


My name is Sylvain Formo and I am 23 years old. I’ve been a member of Canucks Autism Network (CAN) since it was founded in 2008. During that time, they have completely changed my thoughts about having autism. And what a person with autism can do in their community.

Growing up was difficult. When I was younger, I had problems talking and being understood by others. Except for my mom, who always knew what was going on. At school, I struggled the most, where social interactions and speech were the most important.

But I always loved hockey and goaltender was my favourite position growing up. It was hard to participate in sports too. I seemed to learn and interact with my teammates a little differently. In a dressing room of 20 or more people, I never really knew how to talk to the other players.

Then in 2014, Canucks Autism Network started a hockey program — the Vancouver Orcas. The difference was huge in the support I received. There were more than 20 staff and volunteers with us. And they understood everything we were going through.

Sylvain (third from right in back row) on CAN’s inaugural hockey team in 2014.

At 18, I aged out of the program. And as CAN didn’t have an adult program yet, they asked me to volunteer. That is when I found my calling to be a goalie coach.

Learn more about volunteering with Canucks Autism Network

At first, it was just a way to stay involved with the team and be with the guys that I liked playing with. It was challenging. I wasn’t sure how to support these guys that once were my teammates.

But just like when I was a participant, the staff and volunteers carried me along. They gradually gave me the responsibility to lead activities, like team stretches and other drills.

I began to work with the Vancouver team’s goalie. Then, two goalies. I began helping out at the Surrey location a little bit too. After each practice, I started doing my own research on goalie drills through the Hockey Canada, USA Hockey and Finland Hockey websites.

A male coach talking with an ice hockey goalie on the ice.
Sylvain instructs one of the Vancouver Orcas’ goalies during a CAN hockey scrimmage at Rogers Arena

After a couple years as a volunteer, one of the CAN staff approached me and said, “You know you’re doing the job of a staff member now? Working one on one with the kids and developing lesson plans?”

This encouraged me to think of the possibilities. CAN offered me a position as goalie coach in the hockey program. And this past April, I just completed my second full season as a a staff member.

From participant to volunteer to staff, my involvement with Canucks Autism Network has changed my life profoundly. They have supported and encouraged me for over a decade and have pushed me to strive for greater things and better things in my life.

With every CAN program I participated in, volunteered in or worked at, I have learned more about myself. I have gained skills that have carried me forward not only in my employment with CAN, but into my personal life.

CAN has changed my attitude towards the goals I had set for myself. They have given me a newfound sense of confidence that anything is possible. And for that, I am eternally grateful.

But there are so many other kids, teens and young adults who need the continued support of CAN programs. In BC, 1 in 46 children have autism. That is over 16,000 children province-wide.

With your support, you can help us grow our programs and reach out to the autism community. You can help Canucks Autism Network impact lives, like they did for me.

READ MORE: Goalie with autism finds calling coaching CAN hockey

LEARN MORE: Support Canucks Autism Network programs

RETURN TO BLOG HOME

Photo copyright: Alaska Nanooks

Apr 12, 2019

Nearly two years ago, Michael Quinn had just wrapped up a professional hockey career.

In junior and college, he competed against current NHL stars like Tyler Bozak, Kyle Turris and Jake Gardiner. After turning pro, he traveled the world and played in the United States, Hungary and France.

Though he is now retired, Michael hasn’t come close to hanging up his skates. Since settling back home in Surrey, he has found a new calling on the ice as a Canucks Autism Network (CAN) volunteer.

Every Wednesday evening, he laces up at Cloverdale Arena to support CAN participants in our skate program.

Learn more about Canucks Autism Network skate for children with autism.

What motivates him to give back?

“I love being on the ice,” Michael explained. “And CAN has allowed me to pass on my skills and joy of skating to the kids.”

His enthusiasm has helped countless CAN participants develop confidence on the ice and a shared love of skating. The CAN staff in Cloverdale have taken notice.

Whenever they encounter a participant who may need some extra motivation and encouragement, the staff are quick to pair them with Michael.

“The kids gravitate to him because he’s got such an advanced skill set on the ice,” said one of our CAN skate coaches. “But he’s been able to support them in ways that show a natural ability to connect with our participants too.”

While April 7-13 marks National Volunteer Week in Canada, it is also Autism Awareness Month. Like many CAN volunteers, Michael came to us with no experience supporting children with autism. But through a clear passion, desire to give back and guidance from CAN staff, Michael has developed the understanding of autism necessary to make a lasting impact on our participants.

“It only takes an hour out of my week,” Michael shared. “And to be able to put a giant smile on a child’s face – that’s something special. Getting to build relationships with the children and seeing not only their skating skills improve, but also their confidence and interpersonal skills, has been tremendously rewarding.”

Outside of CAN programs, Michael is starting a career as a firefighter with the City of Delta. He will be joining a first responder community in BC that is becoming increasingly aware and accepting of individuals with autism, as well. This past January, CAN launched a free and online training tool for first responders. In the three months since, over 600 fire fighters, police officers, paramedics, search and rescue officers and more have completed the training.

Learn more about Canucks Autism Network’s free and online training for first responders.

Michael will be starting his new role with valuable hands-on experience and is eager to utilize his newfound understanding of autism.

“I have gained so much knowledge and so many communication skills volunteering with CAN,” Michael said. “As a firefighter, it is extremely reassuring that I can use my knowledge about autism to respond to calls involving individuals on the spectrum.”

As an organization, we are uplifted that volunteers like Michael will continue to support the autism community long after their time in our programs.

Thank you, Michael.

Learn more about volunteering for Canucks Autism Network!

RETURN TO BLOG HOME

Jan 11, 2019

This past December, Canucks Autism Network (CAN) Manager of Programs, Elisabeth Walker-Young, received the incredible honour of being named to the Order of Canada. As per a statement from the Governor General, Elisabeth has been appointed “for her excellence in the sport of swimming and for her advocacy of inclusive sport in Canada.”

We are overjoyed that Elisabeth’s tireless work to promote accessibility has been so highly recognized  on a national level. We welcomed Elisabeth to our office team in September 2017. She joined CAN as a highly-experienced advocate and changemaker for inclusion in sports — both as an athlete and a professional.

As a competitive swimmer, Elisabeth is a four-time Paralympian that has won three gold medals for Team Canada. At the 2015 ParaPanAmerican Games, she was chosen for the role of chef de mission (official leader and spokesperson) for Team Canada – an honour that foreshadowed her career in affecting positive change.

Elisabeth Walker-Young speaks at a press conference with the Canadidan Paralympic team
Photo from games.paralympic.ca.

After retiring from competition, Elisabeth took on managerial roles with ParaSport Ontario, Curl BC, the Vancouver Organizing Committee for the 2010 Olympic and Paralympic Games, and viaSport BC, before joining CAN.

In celebration of her appointment, Elisabeth was interviewed this week by Accessible Media Inc (AMI) in Toronto. In addition to speaking about her lived experience as an athlete with a disability, Elisabeth reflected on the province-wide impact on individuals and families living with autism that she now helps oversee with CAN.

“I absolutely love [working at CAN], because it’s an organization that truly believes in sharing their knowledge. We provide that intro to sports, but a huge part of what we do is training,” Elisabeth explained.

Listen to the full 14-minute interview with AMI.

“From a capacity issue, we can’t offer [every possible sports and rec program], so we train the sports sector, recreation sector, first responders. We train anyone in the community to be inclusive and to understand what autism is so that there are more positive experiences in the community.”

On being named to the Order of Canada, Elisabeth had this to say: “It’s a huge honour, but my work isn’t done. I know there’s still so much more to do and so much more to give.”

With passionate leaders like Elisabeth at the helm of our province-wide efforts, we are so excited for what the future of CAN programs, training and awareness initiatives holds.

RETURN TO BLOG HOME

Dec 18, 2019

Canucks Autism Network (CAN) and its Board of Directors today announced that, effective December 31st, 2018, President and CEO Katy Harandi will be moving on from the organization.

Since the foundation of CAN in 2008, Katy Harandi has played a pivotal role in the vision, direction, and growth of the organization. Katy’s steadfast leadership, valuable acumen, and unwavering commitment to the cause will surely leave a lasting impact.

“In our early years, CAN was just a small, grassroots autism organization”, said Katy.” I still recall the initial planning meetings around my kitchen table. Today, I am proud to say that CAN has grown into a leader and change maker in the autism world.”

Katy will continue to better the future for individuals with autism as she begins new initiatives in the community.

“It was an incredibly difficult decision, but I am confident that I am leaving the organization in the hands of a strong executive team that is poised to direct CAN into an exciting new period in its history,” states Katy. “I look forward to witnessing CAN’s continued growth and impact on families living with autism across BC.”

CAN Board Member and longtime supporter Bill Macdonald has been appointed as the new Board Chair. Bill will provide transitional support for the CAN team and help the Founders and Board of Directors determine the future direction of leadership.

“On behalf of everyone at CAN, we would like to thank Katy for her many years of serving families living with autism in British Columbia,” said Paolo Aquilini, CAN Co-Founder.

Read more about Katy’s many contributions to CAN and the autism community in our March 2018 blog post.

For more information, please contact:
Lindsay Petrie, Marketing & Communications Manager
lindsay.petrie@canucksautism.ca

Oct 25, 2018

This story was first featured by the Presidents Group, a network of change-driven BC business leaders who are champions or more accessible, inclusive workplaces.

“When I started working at Canucks Autism Network (CAN), I was shy and nervous about making mistakes. Today, I’m responsible for a variety of tasks – from inventory to data entry. The best part is that I get to help CAN families.” -Siobhan Doyle, Office Assistant

Siobhan Doyle is one of two young adults with autism who works part-time in the CAN office.  As a long-time participant who currently accesses CAN youth and young adult programs, she wanted to give back to the organization that had helped her. In turn, she has become an incredible asset to the team.

A passionate Vancouver Canucks fan, Siobhan first developed a level of familiarity and comfort with the organization and their staff as a participant. So when her Job Readiness Program at Douglas College tasked her with securing a practicum, she naturally reached out to the CAN office.

Like any employee, Siobhan entered her first job with a set of unique strengths and challenges. Joining the CAN office team as an administrative intern, her co-workers immediately recognized her exemplary work ethic.

In particular, Siobhan demonstrated a desire and aptitude to perform repetitive tasks that most staff would find monotonous. She was assigned to data entry, photocopying, filing and general administrative duties – all of which she completed with commendable focus.

However, as Siobhan recalls, it was not a seamless transition into the workforce. “I was mostly quiet and kept to myself. I was in a new environment, didn’t know my co-workers yet, and was nervous about making mistakes.”

A young adult woman sits an office desk
Siobhan in her first year as Office Assistant in 2014

Recognizing the need to ease Siobhan into the demands and nuances of office communication, CAN assigned her with a dedicated supervisor who was able to model proper social and workplace behaviour.

“What I would emphasize to other potential employers is that although I had an understanding of autism, I wasn’t an expert.” explained Amy, CAN’s Manager of Membership Services and Siobhan’s long-time supervisor. “More importantly, we approached Siobhan’s employment with open-mindedness and a willingness to try.”

Despite being an autism organization, CAN did not make assumptions about the type of support that Siobhan would need to succeed in the office environment. Understanding that she, like any other employee, is a unique individual with her own working style, they asked her directly what would help her succeed.

“It was really helpful to have written lists and visual step-by-step instructions on how to complete each task,” Siobhan explained. By providing her with a visual reference in addition to verbal instruction, Siobhan could work independently and refer back to tangible guidelines to confirm the expectations of the task.

By the time Siobhan’s practicum came to an end, she was invited to stay in a part-time capacity to continue contributing her skills to the team.

A group of youth and young adult women in green shirts pose for a celebratory group photo at an outdoor festival.
Siobhan (middle) also volunteers her time at key events, such as the CAN Family Festival in 2014 (pictured).

Among the many roles that she fulfills within the office today, Siobhan is responsible for compiling all coaches’ binders that go out to the 50+ CAN programs on a quarterly basis. Containing participant, staff and volunteer information, curricula, emergency procedures and more, the binder is a critical resource for the success of CAN’s province-wide sports and recreation programs.

When Siobhan isn’t occupied with administrative tasks in the office, you can catch her discussing her favourite Canucks players, reminiscing the most recent softball game (she plays on the office’s rec team), or inviting her co-workers out for a coffee run to Starbucks.

By investing additional time in Siobhan’s training, CAN was not only able to uncover her innate capabilities, they were able to benefit from her incredible work ethic, dedication and skill set. After nearly five years of working in the office, it is clear that Siobhan is a loyal and motivated employee who is delighted to be contributing to the overall success of the organization.

Canucks Autism Network is proud to have followed the lead of other inclusive employers and hopes that more organizations continue to pave the way towards workplace diversity.

RETURN TO BLOG HOME

Sep 7, 2018

This story was first featured through the Presidents Group, a network of BC business leaders committed to improving employment outcomes for people with disabilities in BC. View the original story.

“Coaching the kids, I see myself when I was their age. Growing up with autism, I remember feeling that anxiety. Goaltending is high stress on its own. But because I have experienced those breaking points first-hand, I know to go at their pace.”

Having first joined Canucks Autism Network (CAN) nearly 10 years ago, Sylvain Formo has progressed from participant to volunteer to staff. As a volunteer in their hockey program, Sylvain used his experience as both an individual with autism and a former goalie to go above and beyond in mentoring CAN’s young athletes.

Recognizing the need for his unique background and expertise, CAN innovated a new position within the program and hired Sylvain as their goalie coach. This is his incredible story.

A mother and son ice skate together.
Sylvain and his mother nearly 10 years ago at our first-ever Family Skate at GM Place (now Rogers Arena).

Since our inaugural year in 2008, Sylvain and his mother have accessed CAN programs and events. When CAN expanded to include a hockey program in 2014, he immediately jumped at the opportunity. As a former competitive ringette goalie, Sylvain excelled as the Vancouver Orcas’ netminder.

After aging out of the program, Sylvain approached the organization with a desire to give back. Volunteering for CAN Hockey, he saw an opportunity to create the same positive experiences for children and youth with autism that he benefited from.

Given his experience, Sylvain knew that he had a unique insight into the needs of the program. Unlike other volunteers and coaches within the program, Sylvain understood first-hand what it was like to live with the anxiety and apprehension often associated with autism – let alone the pressure that only a goalie understands. As illustrated by Sylvain, “It takes a special person to willingly stand in front of hockey pucks. And as goalie, you can’t help but feel like each goal is entirely your fault.”

But despite his desire to share his knowledge and insight, Sylvain arrived nervous at each practice, unsure of his ability to lead.

The staff recognized Sylvain’s apprehension and slowly eased him into the responsibilities of being a volunteer. Mentored by the program’s on-site coordinator, Megan Mereniuk, he was encouraged to start by simply leading group stretches at the start of each practice. Gradually, Megan helped Sylvain progress into facilitating more drills and activities, while teaching him the basics of coaching children with autism.

Sylvain’s confidence grew. Having established a trusting relationship with his supervisor, he approached Megan with the idea of preparing a separate lesson plan for the team’s goalie. At home, Sylvain spent hours researching lesson plans on Hockey Canada’s website. Before long, he had developed individualized drills and targets that were even adapted to incorporate the goalie’s love for Mario and Nintendo.

“That was the turning point for me,” recalls Sylvain. “I’m a planner and I have to feel prepared before I do anything. If I don’t expect something coming, it brings up a lot of anxiety.”

Beyond his off-ice preparations, Sylvain began applying his self-awareness about autism and anxiety to inform his interactions with the participants. For example, after noticing that one of the goalies loved books, Sylvain made sure that he had an opportunity to read before hitting the ice to calm his nerves.

“He understands the kids like no one else does,” explained Megan. “Often times, Sylvain is the first one to recognize when a participant is becoming anxious or may need to some extra attention.”

It became clear that his acute awareness and expertise with the program’s goalies was becoming indispensably valuable. Recognizing that Sylvain was in a position to provide unique value to the team, CAN created the role of goalie coach and immediately hired him for the job.

A man smiling.

With endless humility, Sylvain credits CAN’s staff for recognizing his abilities, but being patient with him when he began as a volunteer. It is the same approach he now takes to coaching CAN’s young athletes.

When asked if he would be interested in offering his skills for other CAN programs, like swim, soccer or basketball, Sylvain replied without skipping a beat:

“Absolutely. Working at CAN is when I feel most like me. The best part is that I get to help other kids with autism feel like their best selves too.”

RETURN TO BLOG HOME

Aug 2, 2018

By Keara Farnan

As a 22-year-old woman on the autism spectrum, I have certainly faced extremely challenging situations throughout my life and still continue to.

I live with significant social anxiety and depression. I’m not the most confident person, so trying to lead a normal social life is a challenge. Making conversation is quite difficult for me as I’m never sure how to approach new people. Growing up, I was rejected by many individuals who did not care to understand what having autism meant. I lived in a state of constant distress and agitation – often hanging out alone and waiting for the phone to ring.

Excluded by my peers, I questioned my self-worth and whether it was okay to have autism. However, over time, I have learned to appreciate who I am. Someone once told me, “No one can make you feel inferior without your permission.” And I believe this to be very true.

In addition to improving my self-image, I’ve learned that I can also help manage my anxiety by doing the things I love. For me, these things include writing, working out and being a part of the Canucks Autism Network (CAN) community.

I’ve been a CAN participant since 2011 and even began volunteering for the organization a few years later. CAN is my safe place, because I’m free to be whoever I choose and everyone accepts me for who I am.

One of my most cherished memories is the first time I went to CAN Overnight Camp in the summer of 2016. I was quite nervous to be away from home, especially since there were many CAN participants I didn’t know very well. But paired with an extremely understanding support worker for the entire weekend, I felt so at ease. She was kind and non-judgemental about the social anxiety that I struggled with. With her support, Overnight Camp was among the most memorable experience of my life. The weekend was packed with activities, but my favourites were archery and making paracord bracelets.

A female support worker and young adult female camper sit together while making paracord bracelets.

While Overnight Camp has given me a weekend that I can fondly look back at, CAN’s year-round social programs have provided me with a regular way to stay involved. In North Vancouver, the Weekly Social Group allows me to get to know CAN staff, volunteers and participants over the course of 6 weeks in the Fall, Winter and Spring. By meeting weekly with the same group of young adults, I feel more confident in building rapport and developing healthy relationships. Playing games like Family Feud gives me an opportunity to get to know other participants and practice my social skills.

Most importantly, having fun with other young adults with autism has helped me to see that I am not alone – it’s wonderful to see that there are others who share my struggles. Though our challenges may differ, we all have autism in common.

In addition to being involved as a participant, CAN has also given me the opportunity to volunteer at their community and family events. As I continue to mature into adulthood, I want to find more ways to incorporate CAN into my life. By volunteering at events like Family Concerts, Party in the Park and Easter Tea House in Stanley Park, I can also give back.

I see a huge difference in myself since joining CAN seven years ago. I’m more responsible and open to conversation with others who share my diagnosis. I’ve made friends who I spend time with outside of CAN. Forming friendships outside of CAN still startles me, but I realize that if I avoid social interaction altogether, I’ll only delve deeper into my anxiety, instead of overcoming it.

Two female youth sit together while crafting.

Through a lifetime of experience, I’ve become naturally distrusting of others. But because CAN’s staff and volunteers have been patient with me, I’ve learned to open up and engage others in conversation more and more.

My experiences at CAN have helped me go out of my comfort zone to do the things I love in my community. Exercise helps me feel calm and release anxiety. Since 2015, I’ve been working our regularly at Club 16 in North Vancouver. The staff there accept me for who I am in the same way that CAN staff and volunteers do. They treat me no differently than any other member, which is the kind of respect I wish more people would show me.

I realize that my life is always going to be a challenge, because having autism isn’t easy. There’s never a day where I don’t experience challenges and setbacks – and wish to be a neurotypical girl. I may have trouble making friends, developing romantic relationships, and finding a job. But that doesn’t mean I’m going to give up.

I yearn for acceptance from others who do not understand autism, but I’ve learned that I’m not able to control how others perceive me or treat me – only how I view myself.

I wanted to share my story because above all, I find strength in writing. It helps me let go of negative thoughts. And I find great importance in being able to properly convey my experience – and it’s much easier for me to write than to speak with others. Words are powerful.

I have been recently published on numerous occasions in The Mighty, an online community for individuals with disabilities. My articles have addressed my challenges trusting others, making friends and my sensitivity to touch.

I am currently working on several other pieces, including the challenges of dating, and aspire to write a memoir detailing my experiences as a woman with autism. Through my writing, I hope to inspire others to tell their story and speak openly about their challenges.

I can’t wait to share it with the CAN community.

Later this month, Keara will be participating in the CAN Youth & Young Adult Advisory Group’s first meeting to discuss the future of our programming for participants aged 13+. If you are a youth or young adult CAN member and would like to participate, find more details and RSVP on our online form!

RETURN TO BLOG HOME