sylvain Archives - Canucks Autism Network

At the 2019 Canucks Alumni Charity Golf Tournament, Sylvain Formo delivered this speech in front of a room of former NHL players, tournament participants and guests.

My name is Sylvain Formo and I am 23 years old. I’ve been a member of Canucks Autism Network (CAN) since it was founded in 2008. During that time, they have completely changed my thoughts about having autism. And what a person with autism can do in their community.

Growing up was difficult. When I was younger, I had problems talking and being understood by others. Except for my mom, who always knew what was going on. At school, I struggled the most, where social interactions and speech were the most important.

But I always loved hockey and goaltender was my favourite position growing up. It was hard to participate in sports too. I seemed to learn and interact with my teammates a little differently. In a dressing room of 20 or more people, I never really knew how to talk to the other players.

Then in 2014, Canucks Autism Network started a hockey program — the Vancouver Orcas. The difference was huge in the support I received. There were more than 20 staff and volunteers with us. And they understood everything we were going through.

Sylvain (goalie; third from right in back row) on CAN’s inaugural hockey team in 2014.

At 18, I aged out of the program. And as CAN didn’t have an adult program yet, they asked me to volunteer. That is when I found my calling to be a goalie coach.

Learn more about volunteering with Canucks Autism Network

At first, it was just a way to stay involved with the team and be with the guys that I liked playing with. It was challenging. I wasn’t sure how to support these guys that once were my teammates.

But just like when I was a participant, the staff and volunteers carried me along. They gradually gave me the responsibility to lead activities, like team stretches and other drills.

I began to work with the Vancouver team’s goalie. Then, two goalies. I began helping out at the Surrey location a little bit too. After each practice, I started doing my own research on goalie drills through the Hockey Canada, USA Hockey and Finland Hockey websites.

Sylvain instructs one of the Vancouver Orcas’ goalies during a CAN hockey scrimmage at Rogers Arena

After a couple years as a volunteer, one of the CAN staff approached me and said, “You know you’re doing the job of a staff member now? Working one on one with the kids and developing lesson plans?”

This encouraged me to think of the possibilities. CAN offered me a position as goalie coach in the hockey program. And this past April, I just completed my second full season as a a staff member.

From participant to volunteer to staff, my involvement with Canucks Autism Network has changed my life profoundly. They have supported and encouraged me for over a decade and have pushed me to strive for greater things and better things in my life.

With every CAN program I participated in, volunteered in or worked at, I have learned more about myself. I have gained skills that have carried me forward not only in my employment with CAN, but into my personal life.

CAN has changed my attitude towards the goals I had set for myself. They have given me a newfound sense of confidence that anything is possible. And for that, I am eternally grateful.

But there are so many other kids, teens and young adults who need the continued support of CAN programs. In BC, 1 in 46 children have autism. That is over 16,000 children province-wide.

With your support, you can help us grow our programs and reach out to the autism community. You can help Canucks Autism Network impact lives, like they did for me.

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“Coaching the kids, I see myself when I was their age. Growing up with autism, I remember feeling that anxiety. Goaltending is high stress on its own. But because I have experienced those breaking points first-hand, I know to go at their pace.”

Having first joined Canucks Autism Network (CAN) nearly 10 years ago, Sylvain Formo has progressed from participant to volunteer to staff. As a volunteer in their hockey program, Sylvain used his experience as both an individual with autism and a former goalie to go above and beyond in mentoring CAN’s young athletes.

Recognizing the need for his unique background and expertise, CAN innovated a new position within the program and hired Sylvain as their goalie coach. This is his incredible story.

Sylvain and his mother nearly 10 years ago at our first-ever Family Skate at GM Place (now Rogers Arena).

Since our inaugural year in 2008, Sylvain and his mother have accessed CAN programs and events. When CAN expanded to include a hockey program in 2014, he immediately jumped at the opportunity. As a former competitive ringette goalie, Sylvain excelled as the Vancouver Orcas’ netminder.

After aging out of the program, Sylvain approached the organization with a desire to give back. Volunteering for CAN Hockey, he saw an opportunity to create the same positive experiences for children and youth with autism that he benefited from.

Given his experience, Sylvain knew that he had a unique insight into the needs of the program. Unlike other volunteers and coaches within the program, Sylvain understood first-hand what it was like to live with the anxiety and apprehension often associated with autism – let alone the pressure that only a goalie understands. As illustrated by Sylvain, “It takes a special person to willingly stand in front of hockey pucks. And as goalie, you can’t help but feel like each goal is entirely your fault.”

But despite his desire to share his knowledge and insight, Sylvain arrived nervous at each practice, unsure of his ability to lead.

The staff recognized Sylvain’s apprehension and slowly eased him into the responsibilities of being a volunteer. Mentored by the program’s on-site coordinator, Megan Mereniuk, he was encouraged to start by simply leading group stretches at the start of each practice. Gradually, Megan helped Sylvain progress into facilitating more drills and activities, while teaching him the basics of coaching children with autism.

Sylvain’s confidence grew. Having established a trusting relationship with his supervisor, he approached Megan with the idea of preparing a separate lesson plan for the team’s goalie. At home, Sylvain spent hours researching lesson plans on Hockey Canada’s website. Before long, he had developed individualized drills and targets that were even adapted to incorporate the goalie’s love for Mario and Nintendo.

“That was the turning point for me,” recalls Sylvain. “I’m a planner and I have to feel prepared before I do anything. If I don’t expect something coming, it brings up a lot of anxiety.”

Beyond his off-ice preparations, Sylvain began applying his self-awareness about autism and anxiety to inform his interactions with the participants. For example, after noticing that one of the goalies loved books, Sylvain made sure that he had an opportunity to read before hitting the ice to calm his nerves.

“He understands the kids like no one else does,” explained Megan. “Often times, Sylvain is the first one to recognize when a participant is becoming anxious or may need to some extra attention.”

It became clear that his acute awareness and expertise with the program’s goalies was becoming indispensably valuable. Recognizing that Sylvain was in a position to provide unique value to the team, CAN created the role of goalie coach and immediately hired him for the job.

With endless humility, Sylvain credits CAN’s staff for recognizing his abilities, but being patient with him when he began as a volunteer. It is the same approach he now takes to coaching CAN’s young athletes.

When asked if he would be interested in offering his skills for other CAN programs, like swim, soccer or basketball, Sylvain replied without skipping a beat:

“Absolutely. Working at CAN is when I feel most like me. The best part is that I get to help other kids with autism feel like their best selves too.”