April 22, 2020

It’s been a couple of years since we moved our headquarters to the Kitsilano neighbourhood in Vancouver.

But for years, we called the corner of Yukon and 2nd home. And just across the street is where our office staff got their daily caffeine fix at Starbucks. It wasn’t long before Store Manager Ann-Marie Lee-Teahen knew virtually the entire Canucks Autism Network (CAN) office team by name.

Although we’re no longer immediate neighbours, our friends at Starbucks remain CAN supporters who we are proud to celebrate this National Volunteer Week.

“When I became the community lead in my district, I reached out to CAN for volunteer opportunities,” said Ann-Marie.

“At that time, one of the managers in our district, Evelyn Campbell was a CAN mom.”

“Through CAN, her son Logan has been enrolled in so many sports and social programs. He has come leaps and bounds!”

As a group, Ann-Marie, Evelyn and their fellow baristas began volunteering in our office to help organize and prepare our program supplies. Ann-Marie even donated her time to support our Weekly Youth & Adult Program for a season.

“I received training and learned so much from the program with respect to understanding people with autism,” Ann-Marie said.

Our neighbours across the street were eager to contribute more to our community. So when we asked them to put up some posters to promote our CAN Family Festival in 2016, Ann-Marie got the idea to get involved with our events as well.

Hundreds of families needing to stay warm at our annual Festival of Lights at Van Dusen?

Starbucks was there.

Hockey players arriving early in the morning for an 8am game?

Starbucks was there!

Over the past six years, Starbucks has volunteered at CAN Family Festival, CAN Relay 4 Autism, CAN Festival of Lights and most recently the CAN Pro-Am.

And at each event, they were on hand bright and early or late at night offering a warm smile and a free coffee or hot chocolate!

But their incredible contributions don’t stop there. Through the Starbucks Foundation, Ann-Marie and her South Central Vancouver Starbucks District have donated a total of $3,000 to support CAN programs, training and community engagement initiatives.

Like many businesses, most Starbucks locations are closed due to the current health crisis. And our hearts go out to the many store managers, baristas and all those who are waiting to get back to work.

But knowing how committed they are to giving back, it came as no surprise that the Starbucks at Yukon St and 2nd Ave remains open to frontline workers.

Photo from Starbucks Stories Canada

Ever since our new life of social distancing began, Ann-Marie and her team have been serving free coffee to the many first responders and health care workers in their neighbourhood, including those from Vancouver General Hospital and Vancouver Police Department headquarters.

“It has been a very fulfilling experience, ensuring that our first responders can be the best they can be,” said Ann-Marie.  “If only through a cup of coffee.”

For most, a good day begins with a cup of coffee. For us, our daily lattes and cappuccinos turned into a friendship we have treasured for over six years and counting.

Thank you, Ann-Marie and Starbucks!


Read more

Volunteer Spotlight: “Be friendly to one another”

Vancouver Foundation: Extending CAN’s impact in Nanaimo and Kamloops

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April 20, 2020

 “No matter what, Nina shows up with her bubbly, positive personality. You can’t help but feel happy when she’s around!”
-Kayla Ungaro, CAN Regional Coordinator in Kelowna

This National Volunteer Week, the spotlight is on our incredible BC-wide team in green. What motivates them to give back? What are their favourite memories supporting our participants and families?

We have seen their impact every day in our programs and events ever since we began in 2008. We can’t wait to share their stories with you all week on social media!

Today, we are excited to celebrate Nina Gaspari in Kelowna.

Outside of her busy schedule working at a restaurant and studying biochemistry at UBCO, Nina has dedicated countless week nights and summer days to CAN. In two years, she has volunteered in Gymnastics, Active, Multisport, Weekly Youth & Adult Programs and Summer Day Camps.

Learn more about becoming a CAN volunteer!

“I remember checking in with Nina after her first couple of weeks volunteering,” recalled Kayla Ungaro, CAN Regional Coordinator in Kelowna. “She beamed with excitement that volunteering at CAN was the highlight of her week!”

“Some individuals have an innate ability to connect with participants and be that positive part of their week – that is definitely Nina.”

You’d think it was enough that Nina was finding time to support our program every week. But despite her busy schedule, she went above and beyond last summer. Joining up with fellow CAN volunteer and personal friend Morgan Painchaud, the duo helped organize a benefit concert at the OK Corral. Featuring local Okanagan talents like Ben Klick, Hillside Outlaws and Michael Daniels, Country For CAN raised over $2,500!

We are so lucky to have such enthusiastic volunteers who support our programs with such passion. What drives Nina to dedicate so much time for our participants and families?

“My intention is to demonstrate how to be friendly to one another. I want to help create an environment where CAN participants feel they can try something that they wouldn’t normally do.”

“So any time a child, youth or adult is able to interact with another one confidently, it puts such a big smile on my face.”

In just two years, Nina has volunteered in over 30 weekly sessions at CAN. Among her many hours supporting our participants, she shared with us one of her favourite memories from our Multisport program.

“During the basketball lesson, we were playing pass. The kids were originally paired up with staff and volunteers. But part way through the lesson, one of the kids asked another if he would play pass with him instead,” Nina recalled.

“Although this seems like a very small thing to do, it made me so happy that he had developed the social skills to reach out to a fellow peer.”

This past Winter, Nina took her skills for building social connections among participants to our Weekly Youth & Adult Program.

“I absolutely love playing games and chatting with them,” Nina said. “They are always challenging my perceptions on many things and I always find myself looking forward to the next one.”

The world needs more people like Nina. Lucky for CAN, we have hundreds who share her genuine passion for supporting kids, youth and adults with autism.

While our in-person programs are on hold for the time being, it goes without saying that our CAN volunteers are missing our participants and families immensely.

Learn how we are continuing to support our CAN community during COVID-19 at canucksautism.ca/homeactivities.

“I am so appreciative of what CAN is able to do for so many families,” said Nina. “It is so nice to see how these kids and youth look forward to coming to see us each week — just as much as we look forward to seeing them!”


Additional reading

Former hockey player gives back at CAN skate

Meet Siobhan: CAN participant & part-time employee

Kyle Boyle: Why I volunteer for CAN

Additional info

What kind of training to CAN staff and volunteers receive?

What is each staff and volunteer’s role in CAN programs?

Become a CAN volunteer!

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Mar 27, 2020

My name is Keara Farnan and I wanted to share my experience during the coronavirus pandemic.

I first heard about the coronavirus at the end of 2019, but never thought it would become a serious health crisis. I have become very bored with little to do at home. I’m still managing to stay in contact with my friends and my parents who live in Oliver.

But I feel very disengaged and isolated from society.

I go for walks after breakfast to get groceries and I notice people having to wait in line in to enter. When I walk through the grocery store, I notice most of the stock is missing. And there are signs indicating there is a limit to how many cans of soup customers are allowed to purchase.

Read Keara’s first guest blog with CAN, My life with autism.

I look around me and I see multiple people wearing face masks and gloves and trying to distance themselves from each other. I feel a sense of urgency; I’m not sure if I will be able to get the food I need to survive the next few weeks of this pandemic. The suspense makes me even more nervous.

As I approach the checkout, I notice large pieces of pink tape on the ground and one of the staff tells me to keep my distance. But, I’m not sure what they mean exactly because they didn’t tell me how many metres I need to keep from another customer. I feel panicked as I question if going to the grocery store was even a good idea to begin with.

I do not cope well with sudden changes and I become very grumpy if I’m on my own for long periods of time. My parents have always encouraged me to be more social and interact with my peers. Although, now is certainly not the time to be socially gathering with other people.

I’m stuck between wanting to be social and wanting to remain in self-isolation.

My work is closed, so I won’t be leaving home, except maybe to go to the grocery store or grab a coffee at a café nearby. I feel trapped inside the walls of my apartment as I stare out the window across and look at the other apartment building. It’s like the walls are closing in on me and I don’t like that feeling at all.

I wonder if my neighbours are experiencing the same kind of stress I am, and if other people would understand if I were to explain how I feel about the COVID-19 pandemic. No one really explained to me how serious the coronavirus is. I had to do my own research. And watching the news on TV or reading online articles about COVID-19 is rather disturbing.

I don’t want to think about the coronavirus pandemic anymore. I don’t want to have to stay inside my apartment for what feels like a century.

Living independently on the North Shore, I have had to adapt to manage certain tasks alone, like grocery shopping, budgeting, and doing laundry. I usually go to the gym and work out when I am bored. But unfortunately I do not have that option at the moment.

I’ve been going for walks around the track at Fen Burdett Stadium, which is very close to Carson Graham Secondary.

Physical activity is important to me because it helps me de-stress and also stay in shape.

When I am at home, I like to watch TV, write, bake, and hang out with my cat Maggie. Pets are a great companion for individuals on the spectrum because they provide support and are always there for you when you need a friend.

As a young woman on the autism spectrum, I’m struggling to understand the importance of self-isolation and the effects that the coronavirus may have on those with a disability.

I highly encourage autistic individuals to research COVID-19 online or with their parents to find out more information.

From CAN: ACT-Autism Community Training has a great list of resources for youth & adults with autism to increase their understanding of COVID-19. View here.

Another thing that has really helped me stay calm is watching Netflix and cooking. While it can be hard, you should limit your in-person interactions.

If a friend asks to meet with you in person, you can suggest connecting over the phone or meeting through an online platform instead.

As the rate of coronavirus cases in BC increases, I am becoming even more concerned about the potential of a full lockdown, and the impact it may have on my involvement in Canucks Autism Network (CAN) programs.

Keara in our rock climbing program last year. Read her program testimonial Climbing new heights!

I first joined CAN in 2011 and it has always been a safe place for me to go to where I feel like I belong and fit in. I am very fortunate to be involved with CAN and look forward to future events and programs once the coronavirus passes.

They provide, not only myself, but thousands of other individuals with autism the opportunity to participate in safe, fun, and enjoyable programs — free of judgement or criticism.

I have been staying up-to-date on news from CAN by regularly checking my inbox and their social media platforms, (i.e. Facebook, Instagram, and Twitter), or by reading the monthly CAN newsletter.

I am keeping my fingers crossed that the spread of COVID-19 decreases and CAN programs and events are able to resume without further disruption or health precautions.

-Keara Farnan


How CAN is here to help.

We are closely aware of the need for our youth and adult participants, like Keara, to stay connected while respecting the obligations of social distancing.

Our program team is busily working on new ways for our youth and adult participants to stay in touch with CAN and each other!

Stay tuned in the coming weeks as we announce new initiatives, like virtual meetings, video activities to follow along with at home, a youth and adult newsletter and more. We are excited to stay connected!

Questions? Email CAN’s Navigator of Youth and Adult Services Sarah Armstrong at sarah.armstrong@canucksautism.ca.

Additional resources

Stay up-to-date on CAN program and event announcements at canucksautism.ca/health, our member newsletter and social media (Facebook, Instagram, Twitter and LinkedIN).

For COVID-19 updates and recommendations from provincial health authorities, please visit: bccdc.ca.

We would also like to remind everyone to take care of their mental health. If you are in a crisis, please reach out to Crisis Services Canada – 1-833-456-4566. For additional resources, please visit: foundrybc.ca

Finally, ACT-Autism Community Training has a great list of resources for youth & adults with autism to increase their understanding of COVID-19. View here.

Additional reading

Keara Farnan: My life with autism”
Keara Farnan: Climbing new heights with CAN
Nate Keller: What I want you to know about autism

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Jan 21, 2020

Kelowna, BC – On Sunday, January 26th, Canucks Autism Network (CAN) and Kelowna International Airport (YLW) will host their third annual YLW Accessibility Tour for individuals with autism and their families. Held from 10:00 a.m.-12:30 p.m. in the YLW WestJet check-in area, over 70 individuals are expected at the event.

Due to anxiety or sensory sensitivities, air travel can present significant challenges for individuals with autism. The tour will take families through the entire pre-flight process, including check-in, security, finding their gate and boarding a plane.

Families will also receive Resource Kits with tools to better prepare for air travel, including an activity storybook, step-by-step checklist, tips for travel and airport map. The kits are available for departing travelers at any time at the YLW Information Kiosk.

YLW’s partnership with CAN also aims to educate airport staff and volunteers on how to accommodate individuals with autism and better anticipate challenging situations.

“We are thrilled to work with YLW once again to increase autism accessibility at the airport,” said Britt Andersen, Canucks Autism Network’s Chief Executive Officer. “Because of this tour, individuals with autism and their families can more confidently navigate the airport, opening up a world of travel opportunities.”

Originally developed with Vancouver International Airport (YVR) in 2014, CAN successfully expanded the program to YLW in 2017. In addition to being hosted by CAN and YLW, the YLW Accessibility Tour is offered in collaboration with the Canadian Air Transport Security Authority (CATSA), WestJet and Autism Okanagan.

“For many families and individuals living with autism, travel can be very difficult,” said Sam Samaddar, Airport Director, Kelowna International Airport. “The YLW Accessibility Tour is about giving families the freedom to fly by experiencing the travel process at the airport firsthand.”

For more information about YLW’s autism accessibility resources, please visit ylw.kelowna.ca/autism.

-30-

Media wishing to attend must RSVP with name and media outlet by Friday, January 24, at 1 p.m. to Stephanie Trenholm at strenholm@kelowna.ca

When: Sunday, January 26, 2020

9:30 – 10:00 a.m. Media registration

10:00 – 11:15 a.m. Families check-in

11:30 – 11:50 a.m. Families board plane *no media availability

12:20 – 12:45 p.m. Families return to check-in area

Note: Due to security restrictions, media will not be allowed to pass through security.

Where: Register at WestJet check-in area (see media registration table)

Who: Canucks Autism Network participating families
Sam Samaddar, Airport Director, YLW
Samantha Hanley, Onsite Coordinator, Canucks Autism Network

Parking: Media can park in the short-term lot and bring in their vouchers to be validated.

About Canucks Autism Network (CAN)
Canucks Autism Network (CAN) provides programs to individuals with autism and their families, while promoting acceptance and inclusion through community engagement and training initiatives across BC and beyond.

For media interviews with CAN, please contact:
Hallie Mitchell
Manager of Training & Community Engagement
604-685-4049 ext 219
hallie.mitchell@canucksautism.ca

About Kelowna International Airport (YLW)
As the 10th busiest airport in Canada, YLW’s total economic impact is 4,545 jobs and $789 million in total economic output to the province of British Columbia. Serving over 2 million passengers in 2019, YLW offers more than 70 daily non-stop commercial flights with nine airline partners. For more information, visit ylw.kelowna.ca.

For media interviews with YLW, please contact:
Stephanie Trenholm
Communications Advisor
strenholm@kelowna.ca

Oct 2, 2019

Since our inception in 2008, the Canucks Autism Network (CAN) community has grown from a handful of families in Vancouver to thousands of members province-wide.

But we haven’t achieved this growth on our own. Behind every community impacted, there is an incredible network of compassionate supporters who share in our vision.

That’s why in 2016, the Vancouver Foundation dedicated $138,000 to expand our weekly sports and rec programs in both Nanaimo and Kamloops over three years.

At the time, we were just beginning to offer programs in those regions – with 23 participants in Kamloops and 22 in Nanaimo. But the need among that relatively small group of families was immediately clear.

“So incredible to watch your child move forward”

Within one month of the funding period, CBC caught wind of the impact that the new swim program in Kamloops was having on children with autism.

Riley swimming at Westsyde Pool in Kamloops with the support of a Canucks Autism Network staff. Photo by Jennifer Norwell, CBC.

READ MORE: Kamloops gets swimming lessons for children with autism (CBC)

Melanie Whitaker shared with CBC reporter Jennifer Norwell how previous swim programs were unable to meaningfully engage her son Riley.

With instructors unable to connect with Riley, he struggled to develop his skills in the water. And for children with autism who are 160 times more likely to drown than their peers, water safety skills can be life-saving.

The difference after one swim season with CAN?

“Amazing to watch,” Melanie said. “It’s so incredible to watch your child move forward and know that you don’t have to be frustrated.”

At the same time and over 400 kilometres away, families on Vancouver Island were also experiencing CAN for the first time.

A CAN participant and staff members with in our skate program in Nanaimo.
(Participant pictured not Jason.)

“CAN programs have seriously changed his life”

But while Riley was developing his swim skills in Kamloops, another young boy was building confidence on the ice in Nanaimo.

“We had tried putting Jason in skating lessons before,” Carrie shared back in 2016. “But he spent the first lesson in tears, clinging to the boards. He said that he never wanted to skate again.”

After six weekly lessons with CAN Skate, Jason had a newfound passion. Through the individual attention that he received, his skating skills improved. He had so much fun on the ice, he kept asking his parents to keep going to the rink throughout the week. A far cry from his first experience ice skating.

In a more recent follow up with the family, Carrie gave us an incredible update.

“Jason and his sister participated in an after school rec skate program where he was able to skate with his friends like a neurotypical kid! We are so grateful for these programs. They have seriously changed his life and given him so much confidence.”

Thanks to Vancouver Foundation’s commitment to support CAN’s weekly sports and rec programs, we can also give that same confidence to kids in Swim, Skate, Active and Multisport in both Kamloops and Nanaimo.

At the beginning of the granting period in September 2016, we had a total of 55 participants in those regions.

Three years later, our weekly programs have impacted 370 participants in Kamloops and Nanaimo.

With 192 participants in Kamloops and 178 in Nanaimo, that’s a nearly 700% increase in individuals impacted. Since September 2016, those 370 participants have filled 679 weekly program spots.

But it is only because of generous community supporters that these opportunities exist.

It is because of Vancouver Foundation that moms like Melanie can have peace of mind. And that kids like Jason get a second chance at having fun in their community.

On behalf of the hundreds of CAN families in Nanaimo and Kamloops, thank you.

Aug 23, 2019

Earlier this summer, everyone at the CAN Relay 4 Autism wanted to know.

Who. Was. Spiderman?

The first-ever CAN Relay 4 Autism invited families, supporters and the general public to Swangard Stadium for a day of fun, fitness and festivities.

Attendees were encouraged to come dressed in their best retro attire, superhero suit or whatever fun costume they had in their closet.

Even with a field full of games and activities, festival goers found their attention was repeatedly pulled back to the track where a certain masked crusader just kept running and running.

And running.

Beginning at around 10:30 in the morning and continuing well into the afternoon, the anonymous superhero completed 40 laps. That equates to 16km, in support of Canucks Autism Network.

In full costume. In the sweltering summer heat. Never once taking off his mask to reveal his true identity.

It wasn’t until after the event, that the mysterious masked marathoner revealed his true self.

Christian Bods Brown is an animator at Vancouver-based PIXOMONDO.

One of his coworkers Patricia de Souza, started a team for the CAN Relay at their office.

“I ran the BMO Vancouver Marathon earlier this year and I thought [the CAN Relay] was for a brilliant cause,” Christian shared with us. “So when Patricia invited us to participate, I wanted to get involved.”

Patricia’s family had just joined CAN last year – shortly after her son Silas received his diagnosis.

Patricia and her kids at the 2019 CAN Sports Day.

“Silas really loved the swimming,” Patricia told us. “The staff and volunteers are amazing. They are all so energetic and positive. We’ve had such a great experience so far, we wanted to give back.”

For six months, Patricia, Christian and their fundraising team at work collected cans and bottles.

“I kept bags under my desk and would bring them on the skytrain home with me,” Patricia shared with us.

Team members posted on social media, including Christian, who told his friends and family: “The more you donate, the farther I’ll run!’”

Patricia and Christian running for a cause at the CAN Relay 4 Autism.

In total, Christian, Patricia and Team PIXOMONDO raised $1,550!

Not all heroes wear a suit. But in this case, the costume was appropriate. Because without superhuman supporters like Christian and Patricia, who so eagerly give back, our programs and training initiatives simply would not exist.

Thank you to everyone who energetically supported us at the CAN Relay 4 Autism. We can’t wait to see you next year!

Want to get involved with Canucks Autism Network? Here’s 5 ways you CAN!

Every year, the City of Surrey hosts one of the largest Canada Day celebrations in BC. Presented by Coast Capital Savings, this past month’s Surrey Canada Day featured rides, fireworks and performances by Bif Naked and Our Lady Peace.

Thousands were in attendance, including Julia Langley and her family. For her 9-year-old son with autism, the crowds and noise of the festival environment can be overwhelming.

That’s why the City of Surrey partnered with us to offer CAN Sensory Friendly Spaces at all their major events. Featuring comfortable seating, sensory toys and quiet games, this was the first year that Surrey Canada Day featured the space for guests in need of a break.

“My son was not coping at all. I thought there had to be a sensory zone somewhere,” Julia shared with us after the event. “Sure enough, I see the CAN tent. And inside is a table of noise-cancelling headphones amongst all sorts of fidgets and sensory gear.”

“My son was desperate to go because he knows that CAN is somewhere he can go and feel better. We are so grateful they were there so that we could all enjoy the Our Lady Peace concert!”

After announcing CAN Sensory Friendly Spaces last year, City of Surrey has taken the lead in hosting this resource. It is thanks to them that families like Julia’s can enjoy major community events like Surrey Canada Day.

Visit City of Surrey’s Accessibility webpage to learn more.

Julia’s son with autism was struggling to cope with the noise of the festival environment until they found CAN’s tent with noise-cancelling headphones on loan.

“We are thrilled to provide a sensory friendly space at this year’s Canada Day. It’s a fantastic opportunity for us to encourage inclusiveness and increase accessibility for all of our residents,” said City of Surrey Mayor Doug McCallum in a pre-event press release. “We thank the Canucks Autism Network for their partnership in creating this welcome addition to Surrey’s Canada Day.”

There are many reasons to celebrate on Canada Day. At CAN, we have special reason to celebrate our country’s diversity and inclusion.

Noise-cancelling headphones and quiet activities in the Sensory Friendly Space.

With groups like City of Surrey, we can continue to make community spaces more accessible for all individuals and families living with autism.

To learn how you can partner with CAN to make your community organization or space more accessible, please visit canucksautism.ca/training or email training@canucksautism.ca!


More CAN stories

“At CAN events, I don’t have to worry.”

Nearly 200 “Learn to Fly” during YVR Autism Aviation Days

Why Shawn & Leslie Give: “Our daughter has just flourished.”

Jun 18, 2019

Jack is 9. He has been a Canucks Autism Network participant for six of those years.

During that time, he has learned to swim, play soccer and do gymnastics, while also enjoying summer camp and family events. More recently, he has donated his own chore money and bake sale profits to CAN. Why?

“So more kids like me can have opportunities to learn and experience new things.”

So when World Autism Month approached this past April, he asked his teacher at École Lord Tweedsmuir Elementary in New Westminster if he could speak to his class. Jack wanted to educate his classmates about autism. And ask them to give back and donate, like he did.

Wow.

His teacher went straight to the principal and asked if they could hold a school-wide assembly instead so that he could reach as many students as possible.

Jack is among several students with autism at his school — some of whom struggle to attend assemblies due to sensory sensitivities. When those students heard that Jack was speaking, they eagerly sat and listened to his entire speech.

When he was done speaking, teachers asked the students what they learned about autism. A sea of hands were raised. The best answer?

“They make good friends!”

Jack’s mom was on hand to see his special moment. “There were tears,” she told us. “Jack was aiming for awareness and acceptance. Mission accomplished.”

This was his speech:

Autism is a neuro-developmental disorder. It means it affects brain development. Autism affects 1 in 66 children in Canada.

Someone with autism can have challenges with social interactions, communication and can have repetitive behaviour. It is not contagious. You are born with it. There is no cure, but there are studies to find out what causes it and how to help people with autism.

I was diagnosed with autism when I was 2 ½ years old. For me, having autism means I do things differently from others. I like to arrange my food and dishes in a certain way when I eat.

Jack and his family at our annual Festival of Lights at Van Dusen Gardens

My brain sometimes takes a while to understand what is said to me. That is why I don’t respond right away when someone is talking to me. I need extra help and time between activities. I forget instructions if there are too many steps to follow.

But I have a good memory when it comes to music or songs. I can teach myself to play a song on the piano just by trying out the notes. I remember a lot of information about space and elements just from books I read.

When I was little, I liked to spin toys. I liked to run and follow the lines on the floor. I didn’t know how to play with others, but I learned to read when I was 2.

That is why I am raising awareness about autism and asking kids and teachers for $2 donations. The money will go to Canucks Autism Network. This organization helps kids and their families participate in programs in supportive environments. They also provide training in communities across BC.

I have benefited from their programs – I’ve participated in swimming, gymnastics, soccer, camp and family festivals. I would like to give back to them so more kids like me can have opportunities to learn and experience new things.

I also want to raise acceptance about autism. I want people to understand that if they see someone who is doing something that is unexpected, like flapping their arms — this is called stimming — or talking about the same thing over and over, there is nothing wrong with them.

Those with autism are just like anybody. We just think and do things differently. And we want to have friends too.

Thank you to everyone who donated! Thank you to CAN, who provided help for me. And most of all, thank you to my Mum and Dad.

As a young self-advocate, Jack has already educated hundreds of kids about inclusion, acceptance and support.

With young men like Jack leading the way, the future is so, so bright!

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May 30, 2019

Each year, Canucks Autism Network (CAN) delivers over 500 programs and events throughout BC.  Since 2012, our programming has included opportunities for youth and adults.

As the broader autism community calls for a stronger voice in organizational leadership, we are committed to actively engaging our youth and  adult members as leaders at CAN. As our members continue to mature into their adult years, leadership roles become increasingly important.

Last August, we began to formalize this process by inviting all of our members ages 13 and up to join our Youth and Adult Advisory Committee.* In less than one year, feedback obtained from these CAN members has already made a significant impact on program offerings.

*The name of this group has since changed to Youth and Adult Leadership Committee to more accurately represent this group’s active role in organizational decision making.

A group of 11 youth and young adult Canucks Autism Network members and Canucks Autism Network staff
Some members of our original Youth and  Adult Advisory Committee with CAN staff at the first formal meeting in August 2018

Our members asked for more opportunities to develop life skills – how to take transit, cook and do laundry. They highlighted a need for more vocational opportunities – how to build a resumé, attend an interview and gain experience.  They also re-iterated the need for values that CAN has already brought into their lives — social connection, skill building opportunities and community engagement.

Changes Made to Program Offerings

In direct response to the voices of our members, Canucks Autism Network reached out to community partners to develop new opportunities throughout the 2018-19 program year.

In Surrey, we connected with Avia Employment Services and WorkBC to host two resumé building workshops. Participants made valuable first contact with two employment services, created or improved their resumes, and learned about how to access further services as needed.

Six youth and young adults work in pairs at computer cubicles
CAN and WorkBC staff work with youth & adult members to build their resumes.

CAN’s Explore Volunteering program continued to provide the opportunities our members had requested in our meetings — to gain volunteer experience, work skills, communication and social skills and to sample job opportunities.

Every Saturday morning, participants visited community organizations like Rogers Arena, Vancouver International Airport and Science World. Participants practiced their skills with a range of tasks, including food and beverage services, customer service, administrative work, custodial duties, and gardening.

In addition to work skills, the program also addressed member interest in developing interpersonal skills at work. “I’ve discovered that I’m more capable and compatible with others than I thought,” Brayden shared after volunteering in the Union Gospel Mission (UGM)’s thrift store this past April.

A male young adult organizes a clothing rack at a thrift store
Read more about Brayden’s experience volunteering with UGM through CAN.

To diversify job sampling opportunities, CAN reached out and secured an opportunity for participants to explore trades. Tradeworks hosted a session for our members to learn basic woodworking skills this past September.

In addition to these employment-focused events and programs, CAN added more opportunities focused on mental health. These have included a mindfulness and yoga session and an intro to cooking class in collaboration with Coast Mental Health in Vancouver.

Finally, to address requests for support accessing public transportation, CAN has initiated conversations with BC Transit and Translink. We are currently in the process of developing transit accessibility events in Vancouver and Victoria.

There are still many more exciting program options to explore!  During the process of sampling new programs this past year, the CAN team and its Leadership group members have decided on new areas of focus for youth and adult programs:

  • Social and life skills
  • Employment and volunteering skills
  • Physical and mental health
  • Arts and technology

Youth and Adult Members as Leaders and Advocates

In addition to new programming spearheaded by our members’ suggestions,  the CAN team has been proud to support many of our youth and adult leaders in positions of leadership and advocacy.

Last fall, CAN member Sylvain shared his story with the Presidents Group about finding a successful inclusive employment placement with CAN.  In total, we currently employ 12 individuals on the autism spectrum across our programs and events. Meanwhile, an additional 42 are giving back as volunteers.

In the community, CAN members Keara, Kayla, Tyell and Tilman have represented the organization at various events hosted by partnering organizations. They have promoted the inclusion of autistic adults in various community spaces at events with the City of Surrey, Vancouver Opera and MEC.

A male and two female young adults at an info table
Tilman (left) with CAN and Power To Be staff members at a MEC rock climbing event.
Kayla (left) and Keara (2nd from right) joined our office staff to represent CAN at the Vancouver Opera’s first-ever relaxed performance this past spring.

As CAN members continue to grow their education, experience and skill set, it is our hope that many more will begin to apply for positions with the organization. We are so excited to see the diversity of our team continue to grow as representation of individuals across the spectrum increases in leadership positions at CAN.

We can’t wait to engage with our members to do more to make our communities more inclusive.

Next Steps

To all our CAN members aged 13+ — if you are interested in getting involved in CAN leadership or community advocacy, we want to hear from you!

For those in the Lower Mainland, our next CAN Youth Leadership Committee Meeting is scheduled for Wednesday, June 19 from 6:00-7:30pm at the CAN office (1788 West 8th Ave, Vancouver). CAN members can RSVP online or email sarah.armstrong@canucksautism.ca for more details.

For those in our Vancouver Island, Kelowna or Kamloops regions, please get in touch with us for ways to get involved. Email sarah.amrstrong@canucksautism.ca.

We look forward to hearing from you!

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May 14, 2019

Kerry and her husband Ryan have a son with autism and a younger daughter. Last month, her family participated in the 5th Annual CAN & YVR Autism Accessibility Tour.

Held on April 18, the tour is offered to decrease anxiety often associated with air travel. Individuals and families with autism were invited to familiarize themselves with the pre-flight process, including check-in, security, finding their gate and boarding a plane.

In addition to the tour, each individual with autism was given a YVR Resource Kit, which features an activity storybook, step-by-step checklist, airport map, tips for travel and a tote bag to carry each item.

By increasing expectations and providing a simulated airport experience, the goal of the annual event is to build confidence for future travel.

It was Kerry’s first time at a Canucks Autism Network event. That same night, she shared this feedback with us:

***

Yesterday night, I was front-loading my oldest for the tour. He announced: “I don’t want to do it. But I’m ready to do it. I will use my courage.”

To prep himself on the way there,  he requested that we play “Brave” by Sara Bareilles on repeat.

With his visual schedule in hand, he put that song into action at the airport—conquering check-in and security. He fearlessly filed onto the Air Transat Airbus A330, filled with families just like ours.

Sample pages from the CAN & YVR Activity Storybook.
Travelers with autism can obtain the YVR Resource Kit, including the Activity Storybook (pictured above), at any YVR info desk.

The beautiful thing about this whole experience was that it provided a safe place for nervous fliers and their supporters to just be, without apology.

Meltdowns, earmuffs, iPads, fidgets, and endless questions about every step—it was all okay. There were no dirty looks or hurry-ups, because everybody there just “got it.”

To be honest though—when I signed up for this event, I was thinking mostly of myself. I wanted to have a picture of what traveling with a child who is fearful of crowds, machines, noise, and new things would look like.

And I left with not only that, but also with this sense of feeling deeply loved by countless kind strangers. To the service agents, security and customs officers, airport volunteers, flight attendants, and to the many, many genuinely smiley helpers sporting Canucks Autism Network t-shirts—why do you care about my family so much?

The tour also included an opportunity to sample the YVR Customs Declaration kiosks.

This week, spectrum-related struggles had me feeling extra lost & lonely, and ready to resign from this parenting gig. Tonight felt like the gigantic hug I needed. Thank you Canucks Autism Network and YVR for allowing me and my family to feel seen & safe.

***

We launched this program with YVR in 2014, because we had individuals and families with autism like Kerry’s in mind. Air travel can be a significant challenge for those on the spectrum who have anxiety or sensory sensitivities. But with the correct supports in place, they can accomplish so much.

We have always recognized that the entire family that shares the struggles and successes of an individual with autism. That’s why the tour allowed for the entire immediate family to join in on the experience.

Kerry’s husband & daughter were also able to experience the entire CAN & YVR Autism Accessibility Tour.

The larger the community of support, the better we can all support those on the spectrum. In addition to YVR, this year’s tour was also made possible by collaborations with Air Transat, Canadian Air Transit Security Authority (CATSA), Canada Border Services Agency (CBSA) and US Customs & Border Protection (CBP).

Thanks to these incredible partners, we can continue striving towards our vision for every individual with autism to be understood, accepted and supported in all community spaces.

Learn more about YVR autism accessibility: yvr.ca/autism.
Check out the Facebook album for the 2019 CAN & YVR Autism Accessibility Tour.

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